"We Don't Need a Swab in Our Mouth to Prove Who We Are" Identity, Resistance, and Adaptation of Genetic Ancestry Testing among Native American Communities

被引:15
|
作者
Blanchard, Jessica W. [1 ]
Outram, Simon [2 ]
Tallbull, Gloria [1 ]
Royal, Charmaine D. M. [3 ,4 ]
机构
[1] Univ Oklahoma, Ctr Appl Social Res, 5 Partners Pl,201 Stephenson Pkwy,Suite 4100, Norman, OK 73072 USA
[2] Duke Univ, Ctr Genom Race Ident Difference GRID, SSRI, 2024 West Main St,Erwin Sq Mill Bldg,Bay C, Durham, NC 27705 USA
[3] Duke Univ, Dept African & African Amer Studies, 234 Friedl Bldg,Box 90252, Durham, NC 27708 USA
[4] Duke Univ, Dept Biol, 234 Friedl Bldg,Box 90252, Durham, NC 27708 USA
关键词
BIOMEDICAL-RESEARCH; DNA; GENOMICS; TUSKEGEE; SCIENCE; RACE; ANTHROPOLOGY; CHALLENGES; MISTRUST; SYPHILIS;
D O I
10.1086/705483
中图分类号
Q98 [人类学];
学科分类号
030303 ;
摘要
Genetic ancestry testing (GAT) provides a specific type of knowledge about ancestry not previously available to the general public, prompting questions about the conditions whereby genetic articulations of ancestry present opportunities to forge new identities and social ties but also new challenges to the maintenance of existing social structures and cultural identities. The opportunities and challenges posed by GAT are particularly significant for many indigenous communities-whose histories are shaped by traumatic interactions with colonial powers and Western science-and for whom new applications of GAT may undermine or usurp long-standing community values, systems of governance, and forms of relationality. We conducted 13 focus groups with 128 participants and six in-depth, semistructured interviews with a variety of community leaders examining the perceptions of GAT within indigenous communities across Oklahoma. Our interviews and focus groups suggest that participants-through the articulation of indigeneity as experiential and relational in nature and inherently distinct from genetic notions of ancestry-resist much of the challenge presented by GAT in usurping traditional forms of identity while at the same time recognizing the utility of the technology for tracing unknown ancestry and identifying health risks in the community.
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页码:637 / 655
页数:19
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