It is not enough that we require data to be shared; we have to make sharing easy, feasible and accessible too!

被引:7
|
作者
Hajduk, Gabriela Karolina [1 ]
Jamieson, Nina E. [1 ]
Baker, Bonny L. [1 ]
Olesen, Ole F. [2 ]
Lang, Trudie [1 ]
机构
[1] Univ Oxford, Ctr Trop Med & Global Hlth, Oxford, England
[2] Int Cooperat Europe European & Dev Countries Clin, The Hague, Netherlands
来源
BMJ GLOBAL HEALTH | 2019年 / 4卷 / 04期
关键词
data sharing; health data; clinical trial data; data management; capacity development; repository; open science; global health; low-income countries; middle-income countries; research data; PUBLIC-HEALTH RESEARCH; LEVEL DATA;
D O I
10.1136/bmjgh-2019-001550
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Over the past several years, we have seen a movement towards a more open way of conducting science, with recommendations that ought to lead to reproducible methods, analyses and results, as well as reusable data. Data sharing is widely encouraged and its importance has been noted in the context of health data, including clinical trials.1 2 It is now a standard requirement by publishers, research institutions and regulatory agencies to share data. Many types of health data are increasingly viewed as global public goods that should be made available to the wider scientific community without unnecessary delays, ensuring important findings can be extracted as soon as possible.3 4 Major funders such as the European Commission, National Institutes of Health, Wellcome Trust, Bill & Melinda Gates Foundation and The European and Developing Countries Clinical Trials Partnership (EDCTP; www. edctp. org) are imposing contractual obligations on their grantees to share their data for free and, ideally, without imposing unnecessary barriers on data accessibility (ie, open access or appropriate controlled access5). In the current landscape of global health research, data sharing, including sharing of clinical data collected during routine patient care, clinical data collected by clinical trials, as well as metadata, has therefore become a simple necessity. © 2019 Author(s) (or their employer(s)). Re-use permitted under CC BY-NC. No ommercial re-use. See rights and permissions. Published by BMJ.
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页数:4
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