A Nationwide Survey of Bereaved Family Members' Perception of the Place Patients Spent Their Final Days: Is the Inpatient Hospice Like or Unlike a Home? Why?

Background: During end-of-life care, the place in which the patients spend time influences their quality of life. Objective: To clarify what it means to spend last days at home and in inpatient hospice. Design: This study was a part of a nationwide multicenter questionnaire survey of bereaved family members of cancer patients evaluating the quality of end-of-life care in Japan. Setting/Subjects: A nationwide questionnaire survey was conducted with 779 family members of cancer patients who had died at inpatient hospices. We asked participants about the perceived benefits of spending last days at home and inpatient hospice during the patient's last days. Measurements: A nationwide questionnaire. Results: Of participants, 37.6% (n=185 [95% confidence interval, 33%-42%]) felt that the inpatient hospice was like a home. The family members who reported that the inpatient hospice felt like home significantly tended to report high satisfaction with the level of care (p<0.01). Factors that the participants perceived as benefits of the inpatient hospice were: "If anything changes, as health care professionals are easily available, he/she can handle it" (88.1%), "he/she is reassured" (78.4%), and "he/she is safe" (72.7%). On the contrary, factors that they perceived as benefits of home were: "He/she can do what he/she wants to do without worrying about the eye of other people" (44.1%), "he/she can relax" (43.5%), and "he/she is free" (42.0%). Conclusions: Spending the last days of life in either an inpatient hospice or at home has specific benefits. The place a patient spends his/her end-of-life days should be based on patient and family values.