Participant compensation in global health research: a case study

被引:13
|
作者
Saleh, Sepeedeh [1 ,2 ]
Sambakunsi, Henry [1 ]
Nyirenda, Deborah [1 ]
Kumwenda, Moses [1 ]
Mortimer, Kevin [2 ]
Chinouya, Martha [2 ]
机构
[1] Malawi Liverpool Wellcome Trust, Coll Med, Queen Elizabeth Cent Hosp, POB 30096, Blantyre 3, Malawi
[2] Univ Liverpool Liverpool Sch Trop Med, Pembroke Pl, Liverpool L3 5QA, Merseyside, England
来源
INTERNATIONAL HEALTH | 2020年 / 12卷 / 06期
基金
英国惠康基金;
关键词
ethics dumping; global health; participant compensation; research ethics; MEDICAL-RESEARCH; BIOMEDICAL-RESEARCH; TRIAL PARTICIPANTS; INFORMED-CONSENT; MALAWI; SETTINGS; PAYMENT; AFRICA; ETHICS;
D O I
10.1093/inthealth/ihaa064
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Background: Compensation for research participants can be provided for reasons including reimbursement of costs; compensation for time lost, discomfort or inconvenience; or expression of appreciation for participation. This compensation involves numerous ethical complexities, at times entailing competing risks. In the context of transnational research, often incorporating contexts of economic inequality, power differentials and post-colonialism, these issues extend into wider questions of ethical research conduct. Methods: We describe experiences of conducting a community-based study of air pollution in southern Malawi incorporating ethnographic, participatory and air quality monitoring elements. Decisions surrounding participant compensation evolved in response to changing circumstances in the field. Results: Attention to careful researcher-participant relationships and responsiveness to community perspectives allowed dynamic, contextualised decision-making around participant compensation. Despite widely cited risks, including but not restricted to undue influence of monetary compensation on participation, we learned that failure to adequately recognise and compensate participants has its own risks, notably the possibility of 'ethics dumping'. Conclusions: We recommend active engagement with research participants and communities with integration of contextual insights throughout, including participant compensation, as for all elements of research conduct. Equitable research relationships encompass four central values: fairness, care, honesty and respect.
引用
收藏
页码:524 / 532
页数:9
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