Researching breathlessness in palliative care: consensus statement of the National Cancer Research Institute Palliative Care Breathlessness Subgroup

被引：67

作者：

Dorman, S. ^{[1
]}

Jolley, C. ^{[2
]}

Abernethy, A. ^{[3
]}

Currow, D. ^{[4
]}

Johnson, M. ^{[5
,6
]}

Farquhar, M. ^{[7
]}

Griffiths, G. ^{[8
]}

Peel, T. ^{[9
]}

Moosavi, S. ^{[10
]}

Byrne, A. ^{[11
,12
]}

Wilcock, A. ^{[13
]}

Alloway, L. ^{[14
]}

Bausewein, C. ^{[15
]}

Higginson, I. ^{[15
]}

Booth, S. ^{[16
]}

机构：

[1] Poole Hosp NHS Fdn Trust, Poole BH15 2JB, Dorset, England

[2] Kings Coll London, Div Asthma Allergy & Lung Biol, London, England

[3] Duke Univ, Med Ctr, Dept Med, Div Med Oncol, Durham, NC 27710 USA

[4] Flinders Univ S Australia, Dept Palliat & Support Serv, Adelaide, SA, Australia

[5] St Catherines Hosp, Scarborough, England

[6] Univ Hull, Kingston Upon Hull HU6 7RX, N Humberside, England

[7] Univ Cambridge, Dept Publ Hlth & Primary Care, Gen Practice & Primary Care Res Unit, Cambridge CB2 1TN, England

[8] Wales Canc Trials Unit, Cardiff, S Glam, Wales

[9] N Tyneside Gen Hosp, N Shields, Tyne & Wear, England

[10] Univ London Imperial Coll Sci Technol & Med, Fac Med, Natl Heart & Lung Inst, London SW7 2AZ, England

[11] Marie Curie Ctr, Penarth, S Glam, Wales

[12] Wales Canc Trials Unit, Cardiff, S Glam, Wales

[13] Nottingham Univ Hosp NHS Trust, Hayward House Macmillan Specialist Palliat Canc C, Nottingham, England

[14] N Hampshire Palliat Care Serv, Basingstoke, Hants, England

[15] Kings Coll London, London, England

[16] Cambridge Univ Hosp NHS Fdn Trust, Cambridge, England

来源：

PALLIATIVE MEDICINE | 2009年 / 23卷 / 03期

关键词：

breathlessness; dyspnoea; measurement; methodology; palliative care; research design; QUALITY-OF-LIFE; CHRONIC RESPIRATORY QUESTIONNAIRE; OBSTRUCTIVE PULMONARY-DISEASE; CLINICAL-TRIALS; COMPLEX INTERVENTIONS; FUNCTIONAL-CAPACITY; CHRONIC-BRONCHITIS; DYSPNEA SCALE; HEALTH-STATUS; ILL PATIENTS;

D O I：

10.1177/0269216309102520

中图分类号：

R19 [保健组织与事业（卫生事业管理）];

学科分类号：

摘要：

Breathlessness is common in advanced disease and can have a devastating impact on patients and carers. Research on the management of breathlessness is challenging. There are relatively few studies, and many studies are limited by inadequate power or design. This paper represents a consensus statement of the National Cancer Research Institute Palliative Care Breathlessness Subgroup. The aims of this paper are to facilitate the design of adequately powered multi-centre interventional studies in breathlessness, to suggest a standardised, rational approach to breathlessness research and to aid future 'between study' comparisons. Discussion of the physiology of breathlessness is included. Palliative Medicine (2009); 23: 213-227

引用

页码：213 / 227

页数：15

共 50 条

[1] Palliative care for intractable breathlessness in cancer
Booth, S.
[J]. EUROPEAN JOURNAL OF CANCER CARE, 2006, 15 (03) : 304 - 314
[2] Managing breathlessness: a palliative care approach
Chin, Chloe
Booth, Sara
[J]. POSTGRADUATE MEDICAL JOURNAL, 2016, 92 (1089) : 393 - 400
[3] Breathlessness in palliative care: a practical guide
Gillon, Suzie
Clifton, Ian J.
[J]. BRITISH JOURNAL OF HOSPITAL MEDICINE, 2019, 80 (02) : 72 - 77
[4] What Next in Refractory Breathlessness? Research questions for palliative care
Maddocks, Matthew
Reilly, Charles C.
Jolley, Caroline
Higginson, Irene J.
[J]. JOURNAL OF PALLIATIVE CARE, 2014, 30 (04) : 271 - 278
[5] Development of a breathlessness assessment guide for use in palliative care
Corner, J
O'Driscoll, M
[J]. PALLIATIVE MEDICINE, 1999, 13 (05) : 375 - 384
[6] Symptom control and palliative care. management of breathlessness
Oxberry, S. G.
Lawrie, I.
[J]. BRITISH JOURNAL OF HOSPITAL MEDICINE, 2009, 70 (04) : 212 - +
[7] The brain and breathlessness: Understanding and disseminating a palliative care approach
Booth, Sara
Chin, Chloe
Spathis, Anna
[J]. PALLIATIVE MEDICINE, 2015, 29 (05) : 396 - 398
[8] Sara Booth: palliative care consultant and expert on breathlessness OBITUARY
Warren, Penny
[J]. BMJ-BRITISH MEDICAL JOURNAL, 2022, 379
[9] Palliative care at the National Cancer Institute of Milan
Franco De Conno
Carla Ripamonti
Augusto Caraceni
Luigi Saita
[J]. Supportive Care in Cancer, 2001, 9 : 141 - 147
[10] Palliative care at the National Cancer Institute of Milan
De Conno, F
Ripamonti, C
Caraceni, A
Saita, L
[J]. SUPPORTIVE CARE IN CANCER, 2001, 9 (03) : 141 - 147

← 1 2 3 4 5 →