The Experiences of Suffering of Palliative Care Patients in Malaysia: A Thematic Analysis

被引：23
|
作者：
Beng, Tan Seng [1 ]
Guan, Ng Chong [2 ]
Seang, Lim Kheng [1 ]
Pathmawathi, Subramaniam [3 ]
Ming, Moy Foong [4 ]
Jane, Lim Ee [1 ]
Chin, Loh Ee [1 ]
Loong, Lam Chee [1 ]
机构：
[1] Univ Malaya, Dept Med, Med Ctr, Fac Med, Kuala Lumpur 59100, Malaysia
[2] Univ Malaya, Fac Med, Med Ctr, Dept Psychol Med, Kuala Lumpur 59100, Malaysia
[3] Univ Malaya, Fac Med, Med Ctr, Dept Nursing Sci, Kuala Lumpur 59100, Malaysia
[4] Univ Malaya, Fac Med, Med Ctr, Dept Social & Prevent Med, Kuala Lumpur 59100, Malaysia
来源：
AMERICAN JOURNAL OF HOSPICE & PALLIATIVE MEDICINE | 2014年 / 31卷 / 01期
关键词：
suffering; distress; palliative care; Malaysia; thematic analysis; psychosocial issues; CANCER-PATIENTS; FEELING LIKE; END; SEDATION; BURDEN; DEMORALIZATION; PERSPECTIVES; DIAGNOSIS; ETHICS; OTHERS;
D O I：
10.1177/1049909112458721
中图分类号：
R19 [保健组织与事业（卫生事业管理）];
学科分类号：
摘要：
A qualitative study was conducted with semi-structured interviews to explore the experiences of suffering in 20 adult palliative care inpatients of University Malaya Medical Centre. The results were thematically analyzed. Ten basic themes were generated (1) loss and change differential suffering, (2) care dependence dependent suffering, (3) family stress empathic suffering, (4) disease and dying terminal suffering, (5) health care staff encounters interactional suffering, (6) hospital environment environmental suffering, (7) physical symptoms sensory suffering, (8) emotional reactions emotional suffering, (9) cognitive reactions cognitive suffering, and (10) spiritual reactions spiritual suffering. An existential-experiential model of suffering was conceptualized from the analysis. This model may inform the development of interventions in the prevention and management of suffering.
引用
收藏
页码：45 / 56
页数：12
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