The Experiences of Fathers Who Have Offspring with Autism Spectrum Disorder

被引:36
|
作者
Burrell, Alexander [1 ]
Ives, Jonathan [2 ]
Unwin, Gemma [3 ]
机构
[1] Univ Birmingham, Coll Med & Dent Sci, Birmingham, W Midlands, England
[2] Univ Bristol, Sch Social & Community Med, Room G-4a,Canynge Hall,39 Whatley Rd, Bristol BS8 2PS, Avon, England
[3] Univ Birmingham, Sch Psychol, Birmingham, W Midlands, England
关键词
Autism spectrum disorder; Qualitative; Fathers; Experiences; Acceptance; MEDIATING ROLE; UNITED-STATES; CHILDREN; PARENTS; ACCEPTANCE; PREVALENCE; CHALLENGES; DIAGNOSIS; MOTHERS; ADULTS;
D O I
10.1007/s10803-017-3035-2
中图分类号
B844 [发展心理学(人类心理学)];
学科分类号
040202 ;
摘要
Research exploring parents' experiences of having offspring with autism spectrum disorder (ASD) currently underrepresents fathers. This study aimed to develop an understanding of the experience of fathers, with a view to facilitating improved support. Eight fathers participated in semi-structured interviews exploring their experiences of fathering children with ASD. Fathers described their experiences as a path towards acceptance, with independence and integration for their offspring being key goals. Fathers saw themselves as advocates fighting obstructive services to access appropriate care. The value placed on formal and informal support varied, although the need for personalised support was emphasised. Enabling fathers to see their experiences as a journey, whilst engaging them on the important topics of independence and integration, may improve their experience.
引用
收藏
页码:1135 / 1147
页数:13
相关论文
共 50 条
  • [1] The Experiences of Fathers Who Have Offspring with Autism Spectrum Disorder
    Alexander Burrell
    Jonathan Ives
    Gemma Unwin
    [J]. Journal of Autism and Developmental Disorders, 2017, 47 : 1135 - 1147
  • [2] The experiences of fathers who have a child with autism spectrum disorder: from birth to adulthood
    Dewey, Katherine
    Hodgkinson, Melanie
    [J]. ADVANCES IN AUTISM, 2022, 8 (01) : 1 - 13
  • [3] The impact on Iranian mothers and fathers who have children with an autism spectrum disorder
    Samadi, S. A.
    McConkey, R.
    [J]. JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 2014, 58 (03) : 243 - 254
  • [4] Microaggression Experiences of Fathers With Children With Autism Spectrum Disorder
    Hannon, Michael D.
    Blanchard, Raymond
    Storlie, Cassandra A.
    [J]. FAMILY JOURNAL, 2019, 27 (02): : 199 - 208
  • [5] The perceptions and experiences of adolescent siblings who have a brother with autism spectrum disorder
    Petalas, Michael A.
    Hastings, Richard P.
    Nash, Susie
    Reilly, Deirdre
    Dowey, Alan
    [J]. JOURNAL OF INTELLECTUAL & DEVELOPMENTAL DISABILITY, 2012, 37 (04): : 303 - 314
  • [6] Fathers' Lived Experiences With a Child With Autism Spectrum Disorder: A Phenomenological Study
    Conlon, Katie
    Herlache-Pretzer, Ellen
    Braun, Molly
    Gallo, Allison
    Vincke, Jordan
    Brewer, Lisa
    Gafni-Lachter, Liat
    [J]. AMERICAN JOURNAL OF OCCUPATIONAL THERAPY, 2017, 71 (04):
  • [7] Parenting experiences of fathers of children with autism spectrum disorder with or without intellectual disability
    Rafferty, D.
    Tidman, L.
    Ekas, N., V
    [J]. JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 2020, 64 (06) : 463 - 474
  • [8] Family Coordination in Families who have a Child with Autism Spectrum Disorder
    Silvia Mazzoni
    Christian Veronesi
    Laura Vismara
    Fiorenzo Laghi
    Diane Philipp
    [J]. Journal of Child and Family Studies, 2018, 27 : 3107 - 3116
  • [9] Experiences of Turkish Paraprofessionals Who Support Students With Autism Spectrum Disorder
    Aslan, Yesim Gulec
    [J]. JOURNAL OF EDUCATION-US, 2024, 204 (02): : 362 - 371
  • [10] Family Coordination in Families who have a Child with Autism Spectrum Disorder
    Mazzoni, Silvia
    Veronesi, Christian
    Vismara, Laura
    Laghi, Fiorenzo
    Philipp, Diane
    [J]. JOURNAL OF CHILD AND FAMILY STUDIES, 2018, 27 (10) : 3107 - 3116