The lived experiences of work and health of people living with deaf-blindness due to Usher syndrome type 2

被引:4
|
作者
Ehn, Mattias [1 ,2 ,3 ,4 ]
Wahlqvist, Moa [2 ,4 ,5 ]
Moller, Claes [2 ,4 ]
Anderzen-Carlsson, Agneta [2 ,6 ]
机构
[1] Orebro Univ, Fac Med & Hlth, Orebro, Sweden
[2] Orebro Univ, Swedish Inst Disabil Res, Orebro, Sweden
[3] Reg Stockholm, Habilitat & Hlth, Stockholm, Sweden
[4] Orebro Univ, Fac Med & Hlth, Audiol Res Ctr, Orebro, Sweden
[5] Swedish Natl Resource Ctr Deafblindness, Lund, Sweden
[6] Orebro Univ, Univ Hlth Care Res Ctr, Fac Med & Hlth, Orebro, Sweden
基金
瑞典研究理事会;
关键词
Deafblindness; interpretative phenomenological analysis; Usher syndrome type 2; qualitative study; work; PSYCHOLOGICAL HEALTH; DEAFBLINDNESS; BARRIERS; WELFARE; LIFE;
D O I
10.1080/17482631.2020.1846671
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Purpose: This study aimed to explore lived experiences with working life from the perspective of people with deafblindness due to Usher syndrome type 2 (USH2). Background: A limited number of studies have explored working life of people with Usher syndrome. One study of individuals with USH2 showed that work active reported significantly better psychological health compared to non-working individuals. Methods: Seven participants aged 38-50 years with USH2 participated in interviews analysed by interpretative phenomenological analysis. Results: The analyses yielded four themes showing that work is a source of satisfaction and a commitment that needs to be balanced. It is also associated with facing limitations and feelings of uncertainty. Conclusion: Based on the psychology of work model we have demonstrated that work is associated with social connectedness, self-determination and a source of improved health outcomes. There are however also potential health hazards in people with USH2, indicating a need for balance between individual needs and resources, and an adapted environment, for maintaining or regaining health for actively working people with USH2.
引用
收藏
页数:12
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