Concordance between paediatric self-reports and parent proxy reports on fatigue: A multicentre prospective longitudinal study

被引：0

作者：

Rostagno, Elena ^{[1
,2
]}

Marchetti, Anna ^{[3
]}

Bergadano, Anna ^{[4
]}

Canesi, Marta ^{[5
]}

Partel, Moreno Crotti ^{[6
]}

Rondelli, Roberto ^{[7
]}

De Marinis, Maria Grazia ^{[8
]}

Piredda, Michela ^{[8
]}

机构：

[1] Univ Roma Tor Vergata, Dept Biomed & Prevent, Rome, Italy

[2] Univ Bologna, Pediat Oncol & Hematol Unit, St Orsola Malpighi Hosp, Via Massarenti 11, I-40138 Bologna, Italy

[3] Campus Biomed Roma Univ, Res Unit Nursing Sci, Via Alvaro del Portillo 21, I-00128 Rome, Italy

[4] Regina Margherita Childrens Hosp, Pediat Oncohematol Stem Cell Transplantat & Cellu, Piazza Polonia 94, I-10126 Turin, Italy

[5] Univ Milano Bicocca, Pediat Hematol & Stem Cell Transplantat Unit, Fdn Monza & Brianza Bambino & Sua Mamma, Pediat Clin, Via Pergolesi 33, I-20900 Monza, Italy

[6] Hosp Spedali Civili, Pediat Oncol & Hematol Unit, Piazzale Spedali Civili 1, I-25123 Brescia, Italy

[7] Univ Bologna, Pediat Oncol & Hematol Unit, St Orsola Malpighi Hosp, Via Massarenti 11, I-40138 Bologna, Italy

[8] Campus Biomed Roma Univ, Res Unit Nursing Sci, Via Alvaro del Portillo 21, I-00128 Rome, Italy

来源：

EUROPEAN JOURNAL OF ONCOLOGY NURSING | 2020年 / 49卷

关键词：

Adolescent; Cancer; Child; Concordance; Fatigue;

D O I：

10.1016/j.ejon.2020.101829

中图分类号：

R73 [肿瘤学];

学科分类号：

100214 ;

摘要：

Purpose: To investigate the degree of concordance on fatigue assessment between children and adolescents with cancer and their parents, and its changes over time. Method: Multicentre longitudinal study. Results: Data from 134 dyads were analysed. The mean age of patients was 11.7 years; caregivers had a mean age of 44.1 years. Almost 90% of patients already reported mild or moderate fatigue at the time of diagnosis, decreasing to 69.7% after one year. Concordance on the total fatigue improved over time for the total sample, moving from moderate at the time of diagnosis to good concordance after one year. Conclusions: This was the first study with a longitudinal design investigating concordance between paediatric self-reports and parent proxy reports on fatigue. It showed how concordance between proxies and patients changed over time reaching a good level after one year from the cancer diagnosis.

引用

页数：6

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