CHALLENGES EXPERIENCED BY PARENTS OF CHILDREN DIAGNOSED WITH AUTISM

被引:0
|
作者
Alencar de Souza, Rachell Fontenele [1 ]
Pinto de Souza, Julio Cesar [1 ]
机构
[1] Ctr Univ FAMETRO, Manaus, Amazonas, Brazil
关键词
Autism Spectrum Disorder; family; early diagnosis;
D O I
暂无
中图分类号
G40 [教育学];
学科分类号
040101 ; 120403 ;
摘要
The arrival of a child increases the self-esteem of many families bringing joy, dreams and emotions, but the discovery of a disorder can shake this structure. Currently the medicine lacks technology that can diagnose Autism Spectrum Disorder during pregnancy. This work had as general objective to verify the social confrontations of these families. The research presents a qualitative and quantitative, descriptive approach. As a tool, a semi-structured interview applied to 5 family members of children with Autism Spectrum Disorder was used, with the data collected in the research analyzed using content analysis. Regarding the results, it was found that 4 of family members obtained the diagnosis before the child was three years old. It was understood that the age of the parents could interfere in the chances of the child presenting the disorder. It is noteworthy that, despite presenting an early diagnosis, many mothers reported the difficulty of finding specialized professionals causing distress, suffering and fear. It is understood that each family has its ways of facing the difficulty related to the disorder and its paradigms.
引用
收藏
页码:164 / 182
页数:19
相关论文
共 50 条
  • [1] Challenges faced by parents of children diagnosed with autism spectrum disorder
    Ludlow, Amanda
    Skelly, Charlotte
    Rohleder, Poul
    [J]. JOURNAL OF HEALTH PSYCHOLOGY, 2012, 17 (05) : 702 - 711
  • [2] The Psychological Symptoms and Difficulties Experienced By Parents of Children with Autism
    Kose, Semra
    Sezer, Hilal Kurt
    Kucukoglu, Sibel
    [J]. BANGLADESH JOURNAL OF MEDICAL SCIENCE, 2024, 23 (01): : 179 - 188
  • [3] Stress and Marital Satisfaction of Parents to Children Diagnosed With Autism
    Shtayermman, Oren
    [J]. JOURNAL OF FAMILY SOCIAL WORK, 2013, 16 (03) : 243 - 259
  • [4] Stress and marital satisfaction of parents to children diagnosed with autism
    Shtayermman, O.
    [J]. EUROPEAN PSYCHIATRY, 2013, 28
  • [5] Stressors experienced by children with autism spectrum disorder in Taiwan: Perspectives of children and their parents
    Chin, Wei-Chih
    Li, Hsin-Mei
    Chao, Kuo-Yu
    Chang, Hsueh-Ling
    [J]. NURSING & HEALTH SCIENCES, 2019, 21 (02) : 206 - 213
  • [6] Giving Parents a Voice: A Qualitative Study of the Challenges Experienced by Parents of Children With Disabilities
    Resch, J. Aaron
    Mireles, Gerardo
    Benz, Michael R.
    Grenwelge, Cheryl
    Peterson, Rick
    Zhang, Dalun
    [J]. REHABILITATION PSYCHOLOGY, 2010, 55 (02) : 139 - 150
  • [7] Looking inside the autism puzzle - An introduction to autism for parents of newly diagnosed children
    McKean, TA
    [J]. PROCEEDINGS OF THE 1996 AUTISM SOCIETY OF AMERICA NATIONAL CONFERENCE - OPEN MINDS OPEN DOORS, 1996, : 293 - 298
  • [8] A Review of Barriers Experienced by Immigrant Parents of Children with Autism when Accessing Services
    Lim, Nataly
    O'Reilly, Mark
    Sigafoos, Jeff
    Lancioni, Giulio E.
    Sanchez, Neyda J.
    [J]. REVIEW JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 2021, 8 (03) : 366 - 372
  • [9] A Review of Barriers Experienced by Immigrant Parents of Children with Autism when Accessing Services
    Nataly Lim
    Mark O’Reilly
    Jeff Sigafoos
    Giulio E. Lancioni
    Neyda J. Sanchez
    [J]. Review Journal of Autism and Developmental Disorders, 2021, 8 : 366 - 372
  • [10] PSYCHOLOGICAL FUNCTIONING OF PARENTS WITH CHILDREN RECENTLY DIAGNOSED WITH AUTISM SPECTRUM DISORDERS
    Richard, T.
    Savells, K.
    Swingle, H.
    [J]. JOURNAL OF INVESTIGATIVE MEDICINE, 2009, 57 (01) : 404 - 404