Effects of Undergoing Multiplex Genetic Susceptibility Testing on Parent Attitudes towards Testing Their Children

被引:5
|
作者
Madeo, Anne C. [1 ,5 ]
Tercyak, Kenneth P. [2 ,3 ]
Tarini, Beth A. [4 ]
McBride, Colleen M. [1 ]
机构
[1] NHGRI, Social & Behav Res Branch, NIH, Bethesda, MD 20892 USA
[2] Georgetown Univ, Med Ctr, Dept Oncol, Washington, DC 20007 USA
[3] Georgetown Univ, Med Ctr, Dept Pediat, Washington, DC 20007 USA
[4] Univ Michigan, Dept Pediat, Child Hlth Evaluat & Res CHEAR Unit, Ann Arbor, MI 48109 USA
[5] George E Whalen Dept Vet Affairs Med Ctr, Genom Med Serv, Salt Lake City, UT 84148 USA
关键词
Genetic Predisposition to Disease; Genetic Testing/Psychology; Health Knowledge; Attitudes; Practice; Parents; Psychology; RISK INFORMATION;
D O I
10.1007/s12160-013-9553-z
中图分类号
B84 [心理学];
学科分类号
04 ; 0402 ;
摘要
Parents may pursue common disease risk information about themselves via multiplex genetic susceptibility testing (MGST) for their children. To prospectively assess whether parents who received MGST disclosed their test results to their child, intended to change the child's health habits, or have the child tested. Eighty parents who opted for free MGST completed an online survey about a child in their household before undergoing MGST and a follow-up telephone survey 3 months after receiving results. Few parents (21 %) disclosed results to the child. Undergoing MGST was unrelated to intentions to change the child's health habits but did increase parental willingness to test the child. Greater willingness to test a child was associated with positive attitudes toward pediatric genetic testing and intentions to change the child's health habits. The experience of receiving MGST had little impact on parents' perceptions or behaviors related to their minor child.
引用
收藏
页码:388 / 394
页数:7
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