IMPROVING PATIENT VERSIONS OF CLINICAL PRACTICE GUIDELINES FOR PEOPLE LIVING WITH EPIDERMOLYSIS BULLOSA

被引：0
|
作者：
Mayre-Chilton, Kattya M. [1 ,2 ]
Mullins, Olivia [1 ]
Taguchi, Lie A. [1 ,3 ]
机构：
[1] DEBRA Int, Vienna, Austria
[2] Guys & St Thomas Hosp NHS Fdn Trust, London, England
[3] DEBRA Brasil, Florianopolis, SC, Brazil
来源：
ACTA DERMATO-VENEREOLOGICA | 2020年 / 100卷
关键词：
D O I：
暂无
中图分类号：
R75 [皮肤病学与性病学];
学科分类号：
100206 ;
摘要：
P83
引用
收藏
页码：60 / 60
页数：1
相关论文
共 50 条
  • [1] Supporting sexuality for people living with epidermolysis bullosa: clinical practice guidelines
    King, Alex
    Hanley, Humphrey
    Popenhagen, Mark
    Perez, Florencia
    Thompson, Kerry
    Purvis, Diana
    Garcia, Nora
    Steinlein, Ida
    Werkentoft, Mia
    Lightfoot, Matthew
    Lahat, Michelle
    Begum, Kalsoom
    Tanabe, Julio
    [J]. ORPHANET JOURNAL OF RARE DISEASES, 2021, 16 (01)
  • [2] Supporting sexuality for people living with epidermolysis bullosa: clinical practice guidelines
    Alex King
    Humphrey Hanley
    Mark Popenhagen
    Florencia Perez
    Kerry Thompson
    Diana Purvis
    Nora Garcia
    Ida Steinlein
    Mia Werkentoft
    Matthew Lightfoot
    Michelle Lahat
    Kalsoom Begum
    Julio Tanabe
    [J]. Orphanet Journal of Rare Diseases, 16
  • [3] Physiotherapy for epidermolysis bullosa: clinical practice guidelines
    Weisman, Amy
    Chan, Jennifer M.
    LaPointe, Chantal
    Sjoholm, Kaye
    Steinau, Kristy
    Artus, Kaycie
    Widhiati, Suci
    Bodan, Rebecca
    Wood, Michelle
    Salas-Alanis, Julio C.
    Rocha, Anna Carolina
    Faitli, Beata
    Khuu, Phuong
    [J]. ORPHANET JOURNAL OF RARE DISEASES, 2021, 16 (01)
  • [4] Physiotherapy for epidermolysis bullosa: clinical practice guidelines
    Amy Weisman
    Jennifer M. Chan
    Chantal LaPointe
    Kaye Sjoholm
    Kristy Steinau
    Kaycie Artus
    Suci Widhiati
    Rebecca Bodan
    Michelle Wood
    Julio C. Salas-Alanis
    Anna Carolina Rocha
    Beata Faitli
    Phuong Khuu
    [J]. Orphanet Journal of Rare Diseases, 16
  • [5] Occupational therapy for epidermolysis bullosa: clinical practice guidelines
    Jennifer M. Chan
    Amy Weisman
    Alex King
    Susan Maksomski
    Carrissa Shotwell
    Claire Bailie
    Helen Weaver
    Rebecca Bodan
    Estrella Guerrero
    Matija Zmazek
    Phuong Khuu
    [J]. Orphanet Journal of Rare Diseases, 14
  • [6] Clinical practice guidelines: Oral health care for children and adults living with epidermolysis bullosa
    Kramer, Susanne
    Lucas, James
    Gamboa, Francisca
    Penarrocha Diago, Miguel
    Penarrocha Oltra, David
    Guzman-Letelier, Marcelo
    Paul, Sanchit
    Molina, Gustavo
    Sepulveda, Lorena
    Araya, Ignacio
    Soto, Ruben
    Arriagada, Carolina
    Lucky, Anne W.
    EMellerio, Jemima
    Cornwall, Roger
    Alsayer, Fatimah
    Schilke, Reinhard
    Antal, Mark Adam
    Castrillon, Fernanda
    Paredes, Camila
    Concepcion Serrano, Maria
    Clark, Victoria
    [J]. SPECIAL CARE IN DENTISTRY, 2020, 40 : 3 - 7
  • [7] Occupational therapy for epidermolysis bullosa: clinical practice guidelines
    Chan, Jennifer M.
    Weisman, Amy
    King, Alex
    Maksomski, Susan
    Shotwell, Carrissa
    Bailie, Claire
    Weaver, Helen
    Bodan, Rebecca
    Guerrero, Estrella
    Zmazek, Matija
    Phuong Khuu
    [J]. ORPHANET JOURNAL OF RARE DISEASES, 2019, 14 (1)
  • [8] Clinical practice guidelines for laboratory diagnosis of epidermolysis bullosa
    Has, C.
    Liu, L.
    Bolling, M. C.
    Charlesworth, A. V.
    El Hachem, M.
    Escamez, M. J.
    Fuentes, I.
    Buechel, S.
    Hiremagalore, R.
    Pohla-Gubo, G.
    van den Akker, P. C.
    Wertheim-Tysarowska, K.
    Zambruno, G.
    [J]. BRITISH JOURNAL OF DERMATOLOGY, 2020, 182 (03) : 574 - 592
  • [9] Consensus-based Guidelines for the Provision of Palliative Care for People Living with Epidermolysis Bullosa
    Popenhagen, Mark
    [J]. PAIN MANAGEMENT NURSING, 2024, 25 (02) : E154 - E155
  • [10] Oral Health Care for Patients with Epidermolysis Bullosa - Best Clinical Practice Guidelines
    Kraemer, Susanne M.
    Concepcion Serrano, Maria
    Zillmann, Gisela
    Galvez, Pablo
    Araya, Ignacio
    Yanine, Nicolas
    Carrasco-Labra, Alonso
    Oliva, Patricio
    Brignardello-Petersen, Romina
    Villanueva, Julio
    [J]. INTERNATIONAL JOURNAL OF PAEDIATRIC DENTISTRY, 2012, 22 : 1 - 35
12345