Research priorities in alpha-1 antitrypsin deficiency (AATD) for healthcare professionals

被引：0

作者：

Barrecheguren Fernandez, Miriam ^{[1
]}

Sucena, Maria ^{[2
]}

O'hara, Karen ^{[3
,4
]}

Wilkens, Marion ^{[5
,6
]}

Boyd, Jeanette ^{[7
]}

Kolda, Ewa ^{[8
]}

Turner, Alice ^{[9
,10
]}

Mcelvaney, Gerry ^{[11
]}

Ferrarotti, Ilaria ^{[12
]}

Stolk, Jan ^{[13
]}

Chorostowska-Wynimko, Joanna ^{[14
]}

Stockley, Robert ^{[15
]}

Greulich, Timm ^{[16
,17
]}

Miravitlles, Marc ^{[18
]}

机构：

[1] Hosp Univ Vall dHebron, Pneumol Dept, Barcelona, Spain

[2] Ctr Hosp Univ Porto, Porto, Portugal

[3] Alpha 1 UK Support Grp, London, England

[4] Alpha 1 Global, London, England

[5] Patientenorg Alphal Deutschland eV, Hamburg, Germany

[6] Alpha 1 Global, Aachen, Germany

[7] European Lung Fdn, Sheffield, S Yorkshire, England

[8] Univ Hosp Lords Transfigurat, Pulmonol Allergol & Thorac Oncol Clin, Poznan, Poland

[9] Univ Hosp Birmingham NHS Fdn Trust, Resp Med, Birmingham, W Midlands, England

[10] Univ Birmingham, Inst Appl Hlth Res, Birmingham, W Midlands, England

[11] Beaumont Hosp, Royal Coll Surg Ireland, Irish Ctr Rare Lung Dis, Dublin, Ireland

[12] Univ Pavia, IRCCS San Matteo Hosp Fdn, Dept Internal Med & Therapeut, Pneumol Unit, Pavia, Italy

[13] Leiden Univ, Dept Pulmonol, Med Ctr, Leiden, Netherlands

[14] Natl Inst TB & Lung Dis, Dept Genet & Clin Immunol, Warsaw, Poland

[15] Univ Hosp Birmingham NHS Fdn Trust, Queen Elizabeth Hosp, Lung Invest Unit Med, Birmingham, W Midlands, England

[16] Philipps Univ, Univ Med Ctr Giessen & Marburg, Dept Med Pulm & Crit Care Med, Marburg, Germany

[17] German Ctr Lung Res DZL, Marburg, Germany

[18] CIBER Enfermedades Resp CIBERES, Vall dHebron Res Inst VHIR, Hosp Univ Vall dHebron, Pneumol Dept 12, Barcelona, Spain

来源：

EUROPEAN RESPIRATORY JOURNAL | 2020年 / 56卷

关键词：

COPD; -; management; Orphan diseases;

D O I：

10.1183/13993003.congress-2020.2430

中图分类号：

R56 [呼吸系及胸部疾病];

学科分类号：

摘要：

2430

引用

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页数：2

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