Collaboration and Networking

被引:6
|
作者
Husson, O. [1 ]
Manten-Horst, E. [2 ]
van der Graaf, W. T. A. [2 ,3 ,4 ]
机构
[1] Radboud Univ Nijmegen, Med Ctr, Dept Med Psychol, Nijmegen, Netherlands
[2] Radboud Univ Nijmegen, Med Ctr, Dept Med Oncol, Nijmegen, Netherlands
[3] Inst Canc Res, Dept Clin Studies, London, England
[4] Royal Marsden NHS Fdn Trust, London, England
来源
关键词
YOUNG-ADULT CANCER; INTERNATIONAL PERSPECTIVES; PSYCHOSOCIAL CARE; ADOLESCENTS; TEENAGERS; SURVIVORS; PROGRAM; MANAGEMENT; SIGNATURE; DIAGNOSIS;
D O I
10.1159/000447071
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
Awareness of the need for collaboration across pediatric and adult cancer to care for adolescents and young adults (AYAs) arose from the recognition of the unique characteristics of AYAs with cancer. Neither pediatric nor adult oncology hospital departments are able to provide age-appropriate care single handedly. The best way to bridge the gap in care of AYA cancer patients is to centralize aspects of their care within dedicated AYA care programs, including the following essential components: provision of developmentally appropriate and multidisciplinary (supportive) care, availability of AYA inpatient and outpatient facilities and healthcare professional AYA expertise as collaboration between adult and pediatric departments. Barriers are related to the slowly emerging evidence of benefit, cultural differences (collaboration between pediatric and adult oncology professionals), administrative and logistic challenges (small number of AYAs makes it difficult to create an AYA program in every hospital) and financial aspects (dependency on philanthropic funds). The sustainable development of an AYA program requires acceptance as a standard of care at the clinical and patient community and at government level. To improve the quality, equity and quantity of research and innovation in AYA cancer care across the world, it is necessary to join forces and collaborate in international networks to study issues such as the features of quality care, collaboration between pediatric and adult clinical teams, trial groups and professional societies, and AYAspecific groups such as Critical Mass, Canteen or European Network for Teenagers and Young Adults with Cancer. (C) 2016 S. Karger AG, Basel
引用
收藏
页码:50 / 63
页数:14
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