How Can Photo Sharing Inspire Sharing Genomes?

被引:0
|
作者
Cogo, Vinicius V. [1 ]
Bessani, Alysson [1 ]
Couto, Francisco M. [1 ]
Gama-Carvalho, Margarida [2 ]
Fernandes, Maria [3 ]
Esteves-Verissimo, Paulo [3 ]
机构
[1] Univ Lisbon, Fac Ciencias, LaSIGE, Lisbon, Portugal
[2] Univ Lisbon, Fac Sci, BioISI Biosyst & Integrat Sci Inst, Lisbon, Portugal
[3] Univ Luxembourg, SnT Interdisciplinary Ctr Secur Reliabil & Trust, Luxembourg, Luxembourg
基金
欧盟地平线“2020”;
关键词
Privacy; Data sharing; Biology and genetics; INFORMATION;
D O I
10.1007/978-3-319-60816-7_10
中图分类号
Q [生物科学];
学科分类号
07 ; 0710 ; 09 ;
摘要
People usually are aware of the privacy risks of publishing photos online, but these risks are less evident when sharing human genomes. Modern photos and sequenced genomes are both digital representations of real lives. They contain private information that may compromise people's privacy, and still, their highest value is most of times achieved only when sharing them with others. In this work, we present an analogy between the privacy aspects of sharing photos and sharing genomes, which clarifies the privacy risks in the latter to the general public. Additionally, we illustrate an alternative informed model to share genomic data according to the privacy-sensitivity level of each portion. This article is a call to arms for a collaborative work between geneticists and security experts to build more effective methods to systematically protect privacy, whilst promoting the accessibility and sharing of genomes.
引用
收藏
页码:74 / 82
页数:9
相关论文
共 50 条
  • [1] Sharing the Studio: How Creative Livestreaming can Inspire, Educate, and Engage
    Fraser, C. Ailie
    Kim, Joy O.
    Thornsberry, Alison
    Klemmer, Scott
    Dontcheva, Mira
    [J]. PROCEEDINGS OF THE 2019 ON CREATIVITY AND COGNITION - C&C 19, 2019, : 144 - 155
  • [2] Sharing is caring: How sharing opinions online can connect people into groups and foster identification
    O'Reilly, Caoimhe
    Maher, Paul J.
    Luders, Adrian
    Quayle, Michael
    [J]. ACTA PSYCHOLOGICA, 2022, 230
  • [3] How Legacy Businesses Can Compete in the Sharing Economy
    不详
    [J]. MIT SLOAN MANAGEMENT REVIEW, 2020, 61 (04) : 83 - 84
  • [4] How Millennials' Sharing Habits Can Benefit Organizations
    Yvanovich, Rick
    [J]. HARVARD BUSINESS REVIEW, 2010, 88 (11) : 25 - 25
  • [5] How Sharing Can Contribute to More Sustainable Cities
    Boyko, Christopher T.
    Clune, Stephen J.
    Cooper, Rachel F. D.
    Coulton, Claire J.
    Dunn, Nick S.
    Pollastri, Serena
    Leach, Joanne M.
    Bouch, Christopher J.
    Cavada, Mariana
    De laurentiis, Valeria
    Goodfellow-Smith, Mike
    Hale, James D.
    Hunt, Dan K. G.
    Lee, Susan E.
    Locret-Collet, Martin
    Sadler, Jon P.
    Ward, Jonathan
    Rogers, Christopher D. F.
    Popan, Cosmin
    Psarikidou, Katerina
    Urry, John
    Blunden, Luke S.
    Bourikas, Leonidas
    Buchs, Milena
    Falkingham, Jane
    Harper, Mikey
    James, Patrick A. B.
    Kamanda, Mamusu
    Sanches, Tatiana
    Tuner, Philip
    Wu, Phil Y.
    Bahaj, AbuBakr S.
    Ortegon, Adriana
    Barnes, Katie
    Cosgrave, Ellie
    Honeybone, Paul
    Joffe, Helene
    Kwami, Corina
    Zeeb, Victoria
    Collins, Brian
    Tyler, Nick
    [J]. SUSTAINABILITY, 2017, 9 (05)
  • [6] How Sharing Information Can Garble Experts' Advice
    Elliott, Matthew
    Golub, Benjamin
    Kirilenko, Andrei
    [J]. AMERICAN ECONOMIC REVIEW, 2014, 104 (05): : 463 - 468
  • [7] How can sharing clinical information be made to work?
    Neame, R
    Olson, M
    [J]. MEDINFO '98 - 9TH WORLD CONGRESS ON MEDICAL INFORMATICS, PTS 1 AND 2, 1998, 52 : 315 - 318
  • [8] How YouTube can inspire
    Bhatnagar, Ansh
    [J]. PHYSICS WORLD, 2016, 29 (09) : 21 - 21
  • [9] Hybrid repertoires of photo sharing: exploring the complexities of young adults' photo-sharing practices
    Lobinger, Katharina
    Venema, Rebecca
    Kaufhold, Anja
    [J]. VISUAL COMMUNICATION, 2022, 21 (01) : 73 - 96
  • [10] How Secret-sharing can Defeat Terrorist Fraud
    Avoine, Gildas
    Lauradoux, Cedric
    Martin, Benjamin
    [J]. WISEC 11: PROCEEDINGS OF THE FOURTH ACM CONFERENCE ON WIRELESS NETWORK SECURITY, 2011, : 145 - 155