Researching disabled children and young people's views on decision-making: Working reflexively to rethink vulnerability

被引：9
|
作者：
Skyrme, Sarah Louise [1 ,2 ]
Woods, Simon [2 ]
机构：
[1] Univ Cumbria, Carlisle, England
[2] Newcastle Univ, Newcastle Upon Tyne, Tyne & Wear, England
来源：
CHILDHOOD-A GLOBAL JOURNAL OF CHILD RESEARCH | 2018年 / 25卷 / 03期
关键词：
Decision-making; disabled children and young people; Duchenne muscular dystrophy; medical research; qualitative research; DUCHENNE MUSCULAR-DYSTROPHY; SOCIAL-RESEARCH; ETHICS; CHILDHOOD; ILLNESS; HEALTH; DISABILITY; SOCIOLOGY; CONSENT; REFLECTIONS;
D O I：
10.1177/0907568218769365
中图分类号：
C [社会科学总论];
学科分类号：
03 ; 0303 ;
摘要：
Issues relating to qualitative research with disabled children and young people will be discussed. Semi-structured interviews with boys who have Duchenne muscular dystrophy were conducted to explore their thoughts on how they might make a decision to take part in medical research. Assumptions about disabled children's vulnerability can impact how researchers conduct qualitative research, and how they are involved in significant decision-making. Working reflexively and in partnership with children illustrates their competence, supporting reconsideration of their vulnerability.
引用
收藏
页码：355 / 368
页数：14
相关论文
共 50 条
  • [1] Recording of Children and Young People's Views in Contact Decision-Making
    Porter, Robert B.
    [J]. BRITISH JOURNAL OF SOCIAL WORK, 2020, 50 (06): : 1796 - 1815
  • [2] Supporting the Participation of Disabled Children and Young People in Decision-making
    Franklin, Anita
    Sloper, Patricia
    [J]. CHILDREN & SOCIETY, 2009, 23 (01) : 3 - 15
  • [3] Young people's views about their involvement in decision-making
    Aston, Hermione
    Lambert, Nathan
    [J]. EDUCATIONAL PSYCHOLOGY IN PRACTICE, 2010, 26 (01) : 41 - 51
  • [4] Children and young people's inclusion in public decision-making
    Partridge, Alison
    [J]. SUPPORT FOR LEARNING, 2005, 20 (04) : 181 - 189
  • [5] Researching the Lives of Disabled Children and Young People
    Stalker, Kirsten
    Abbott, David
    Beresford, Bryony
    Carpenter, John
    McConkey, Roy
    Watson, Nick
    [J]. CHILDREN & SOCIETY, 2012, 26 (03) : 173 - 180
  • [6] The Children's Planning Initiative: Researching Decision-Making for Children
    Roger Adams
    John Welsby
    [J]. Systemic Practice and Action Research, 1998, 11 : 229 - 244
  • [7] The children's planning initiative: Researching decision-making for children
    Adams, R
    Welsby, J
    [J]. SYSTEMIC PRACTICE AND ACTION RESEARCH, 1998, 11 (03) : 229 - 244
  • [8] Children and Young People’s Participation in decision-making in Foster Care
    Paulo Delgado
    João M. S. Carvalho
    Sílvia Alves
    [J]. Child Indicators Research, 2023, 16 : 421 - 445
  • [9] Children and Young People's Participation in decision-making in Foster Care
    Delgado, Paulo
    Carvalho, Joao M. S.
    Alves, Silvia
    [J]. CHILD INDICATORS RESEARCH, 2023, 16 (01) : 421 - 445
  • [10] Children's and Young People's Participation in Public Decision-Making Introduction
    Hinton, Rachel
    Tisdall, E.
    Gallagher, Michael
    Elsley, Susan
    [J]. INTERNATIONAL JOURNAL OF CHILDRENS RIGHTS, 2008, 16 (03): : 281 - 284
12345