'I am free in my wheelchair but pain does have a say in it though': The meaning and experience of quality of life when living with paraplegia and chronic pain

被引:12
|
作者
Hughes, Melanie [1 ]
Burton, Amy E. [1 ]
Dempsey, Robert C. [1 ]
机构
[1] Staffordshire Univ, Stoke On Trent, Staffs, England
关键词
disability; interpretative phenomenological analysis; pain; qualitative methods; quality of life; SPINAL-CORD-INJURY; INTERPRETATIVE PHENOMENOLOGICAL ANALYSIS; PHOTO-ELICITATION; SOCIAL SUPPORT; BACK-PAIN; SELF; PEOPLE; IMAGES;
D O I
10.1177/1359105317750254
中图分类号
B849 [应用心理学];
学科分类号
040203 ;
摘要
This study investigated how wheelchair-using individuals with paraplegia and chronic pain make sense of the factors associated with quality of life based on interviews using photo-elicitation and interpretative phenomenological analysis. Three superordinate themes emerged in the analysis: experiencing quality of life through the perception of self and identity, interpersonal relationships as facilitators and barriers to quality of life and life in a wheelchair: pain experience and management. Quality of life for those living with paraplegia and chronic pain is experienced as a complex interaction across several life domains. The use of photographs may improve the communication of pain-related experiences and understanding by healthcare staff.
引用
收藏
页码:1356 / 1367
页数:12
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