Stewardship Practices of US Biobanks

被引：29

作者：

Henderson, Gail E. ^{[1
]}

Edwards, Teresa P. ^{[2
]}

Cadigan, R. Jean ^{[1
]}

Davis, Arlene M. ^{[1
]}

Zimmer, Catherine ^{[2
]}

Conlon, Ian ^{[3
]}

Weiner, Bryan J. ^{[4
]}

机构：

[1] Univ N Carolina, Sch Med, Dept Social Med, Chapel Hill, NC 27599 USA

[2] Univ N Carolina, HW Odum Inst Res Social Sci, Chapel Hill, NC 27599 USA

[3] Univ N Carolina, Dept Sociol, Chapel Hill, NC 27599 USA

[4] Univ N Carolina, Gillings Sch Global Publ Hlth, Dept Hlth Policy & Management, Chapel Hill, NC 27599 USA

来源：

SCIENCE TRANSLATIONAL MEDICINE | 2013年 / 5卷 / 215期

关键词：

INCIDENTAL FINDINGS; RECOMMENDATIONS; GOVERNANCE; COMMUNITY; CONSENT;

D O I：

10.1126/scitranslmed.3007362

中图分类号：

Q2 [细胞生物学];

学科分类号：

071009 ; 090102 ;

摘要：

Biobanks require new governance models that address their ethical and regulatory challenges. One model relies on stewardship of specimens throughout their life course. Here, we discuss fndings from our survey of 456 U.S. biobank managers that addressed whether and how biobanks steward their specimens. The fndings reveal that most biobanks do not create ongoing relationships with contributors but do practice stewardship over storing and sharing of specimens. Biobanks now need guidance to fully articulate stewardship practices that ensure respect for contributors while facilitating research.

引用

页数：6

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