"It is not a scientific number it is just a feeling": Populating a multi-dimensional end-of-life decision framework using deliberative methods

被引:4
|
作者
Coast, Joanna [1 ]
Bailey, Cara [2 ]
Canaway, Alastair [3 ]
Kinghorn, Philip [4 ]
机构
[1] Univ Bristol, Bristol Med Sch, Hlth Econ Bristol, Populat Hlth Sci, 1-5 Whiteladies Rd, Bristol BS8 1NU, Avon, England
[2] Univ Birmingham, Inst Clin Sci, Sch Nursing, Birmingham, W Midlands, England
[3] Univ Warwick, Warwick Med Sch, Warwick Clin Trials, Warwick, England
[4] Univ Birmingham, Inst Appl Hlth Res, Hlth Econ Unit, Birmingham, W Midlands, England
基金
欧洲研究理事会; 英国惠康基金;
关键词
capabilities; deaths; externalities; health; normative criteria; SUPPORTIVE CARE MEASURE; ECONOMIC-EVALUATION; CAREGIVERS; ILLNESS;
D O I
10.1002/hec.4239
中图分类号
F [经济];
学科分类号
02 ;
摘要
The capability approach is potentially valuable for economic evaluation at the end of life because of its conceptualization of wellbeing as freedom and the potential for capturing outcomes for those at end of life and those close to persons at the end of life. For decision making, however, this information needs to be integrated into current evaluation paradigms. This research explored weights for an integrated economic evaluation framework using a deliberative approach. Twelve focus groups were held (38 members of the public, 29 "policy makers," seven hospice volunteers); budget pie tasks were completed to generate weights. Constant comparison was used to analyze qualitative data, exploring principles behind individuals' weightings. Average weights elicited from members of the general population and policy makers for the importance that should be given to close persons (vs. patients) were very similar, at around 30%. A "sliding scale" of weights between health gain and the capability for a good death resulted from the policy maker and volunteer groups, with increasing weight given to the capability for a good death as the trajectory got closer to death. These weights can be used in developing a more comprehensive framework for economic evaluation at end of life.
引用
收藏
页码:1033 / 1049
页数:17
相关论文
共 13 条
  • [1] Multi-dimensional approach to end-of-life care: The Welfare Model
    Sim, Shin Wei
    Soh, Tze Ling Gwendoline Beatrice
    Krishna, Lalit Kumar Radha
    [J]. NURSING ETHICS, 2019, 26 (7-8) : 1955 - 1967
  • [2] Multi-dimensional hierarchical remanufacturability evaluation method for end-of-life mechanical parts
    Zhang, Xiu-Fen
    Gao, Yun-Fei
    [J]. Zhejiang Daxue Xuebao (Gongxue Ban)/Journal of Zhejiang University (Engineering Science), 2020, 54 (05): : 954 - 962
  • [3] Multi-dimensional pool analysis of Phenix end-of-life natural circulation test with MARS-LMR code
    Jeong, H. -Y.
    Ha, K. -S.
    Choi, C. -W.
    [J]. ANNALS OF NUCLEAR ENERGY, 2014, 63 : 309 - 316
  • [4] Analysis of Phenix End-of-Life asymmetry test with multi-dimensional pool modeling of MARS-LMR code
    Jeong, H. -Y.
    Ha, K. -S.
    Choi, C. -W.
    Park, M. -G.
    [J]. ANNALS OF NUCLEAR ENERGY, 2015, 75 : 443 - 451
  • [5] Sustainability assessment of new technologies using multi criteria decision making: A framework and application in sectioning end-of-life wind turbine blades
    Lund, Kristine Wilhelm
    Nielsen, Mikkel Liep
    Madsen, Erik Skov
    [J]. RENEWABLE & SUSTAINABLE ENERGY REVIEWS, 2023, 184
  • [7] Proposed Methodology for End-of-Life Option using Multi Criteria Decision Analysis: A Study for General Paper Product
    Mahmood, Salwa
    Edirudzin, Muhammad Aizrul Ezuan
    Jiran, Nur Syamimi
    [J]. PERTANIKA JOURNAL OF SCIENCE AND TECHNOLOGY, 2021, 29 (04): : 2993 - 3012
  • [8] A scientific writing pedagogy and mixed methods assessment for engineering education using open-coding and multi-dimensional scaling
    Tao, Jinsong
    McClure, Stephen C.
    Zhang, Xiaoxing
    Waqas, Muhammad
    Wen, Xishan
    [J]. INTERNATIONAL JOURNAL OF TECHNOLOGY AND DESIGN EDUCATION, 2020, 30 (02) : 413 - 426
  • [9] A scientific writing pedagogy and mixed methods assessment for engineering education using open-coding and multi-dimensional scaling
    Jinsong Tao
    Stephen C. McClure
    Xiaoxing Zhang
    Muhammad Waqas
    Xishan Wen
    [J]. International Journal of Technology and Design Education, 2020, 30 : 413 - 426
  • [10] Prioritizing Strategies for Sustainable End-of-Life Vehicle Management Using Combinatorial Multi-Criteria Decision Making Method
    Ahmed, Shameem
    Ahmed, Shamsuddin
    Shumon, Md. Rezaul Hasan
    Quader, M. Abdul
    Cho, Haeng Muk
    Mahmud, Md. Iqbal
    [J]. INTERNATIONAL JOURNAL OF FUZZY SYSTEMS, 2016, 18 (03) : 448 - 462