Development, Implementation, and Evaluation of an Advance Care Planning Program for Professionals in Palliative Care of People With Intellectual Disability

被引：5
|
作者：
Voss, Hille [1 ]
Vogel, Anique G. F. M. [2 ]
Wagemans, Annemieke M. A. [2 ,3 ,4 ]
Francke, Anneke L. [1 ,5 ,6 ]
Metsemakers, Job F. M. [4 ]
Courtens, Annemie M. [3 ]
de Veer, Anke J. E. [1 ]
机构：
[1] Netherlands Inst Hlth Serv Res Nivel, POB 1568, NL-3513 CR Utrecht, Netherlands
[2] Maasveld, Koraal, Maastricht, Netherlands
[3] Maastricht Univ, Med Ctr, Expertise Ctr Palliat Care, Maastricht, Netherlands
[4] Maastricht Univ, Dept Family Med, Fac Hlth Med & Life Sci, Maastricht, Netherlands
[5] Vrije Univ Amsterdam, Dept Publ & Occupat Hlth, Amsterdam UMC, Amsterdam, Netherlands
[6] Expertise Ctr Palliat Care, Amsterdam, Netherlands
来源：
INTELLECTUAL AND DEVELOPMENTAL DISABILITIES | 2021年 / 59卷 / 01期
关键词：
advance care planning; palliative care; intellectual disability; end of life; OF-LIFE CARE; DECISION-MAKING; OLDER-PEOPLE; END; PHYSICIANS; COMMUNITY; SERVICES; PATIENT; FUTURE; ADULTS;
D O I：
10.1352/1934-9556-59.1.39
中图分类号：
G76 [特殊教育];
学科分类号：
040109 ;
摘要：
In this article we describe how an advance care planning (ACP) program was developed, implemented, and evaluated. Our aim was to improve ACP in palliative care for people with intellectual disability (ID). The program was based on 10 competencies needed for ACP and was developed in a co-design process with people with ID, relatives, and professionals. The program was implemented in six ID care organizations in the Netherlands and consisted of an information pack, a training course, and an implementation interview about implementing ACP. Professionals indicated that their competencies had improved, particularly regarding communication and the application of ACP as a standard element in palliative care practice. This program therefore seems helpful in training ID care professionals in the competencies needed for ACP.
引用
收藏
页码：39 / 54
页数：16
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