Considerations for improving quality of care of patients with rheumatoid arthritis and associated comorbidities

被引:18
|
作者
Kvien, Tore K. [1 ]
Balsa, Alejandro [2 ]
Betteridge, Neil [3 ]
Buch, Maya H. [4 ,5 ]
Durez, Patrick [6 ]
Favalli, Ennio Giulio [7 ]
Favier, Guillaume [8 ]
Gabay, Cem [9 ]
Geenen, Rinie [10 ]
Gouni-Berthold, Ioanna [11 ]
van den Hoogen, Frank [12 ,13 ]
Kent, Alison [14 ]
Klareskog, Lars [15 ]
Ostergaard, Mikkel [16 ]
Pavelka, Karel [17 ]
Polido Pereira, Joaquim [18 ]
Semb, Anne Grete [1 ]
Skold, Magnus [19 ,20 ,21 ]
Dougados, Maxime [22 ]
机构
[1] Diakonhjemmet Hosp, Dept Rheumatol, Oslo, Norway
[2] Hosp Univ La Paz, Madrid, Spain
[3] Neil Betteridge Associates, London, England
[4] Univ Manchester, Sch Biol Sci, Ctr Musculoskeletal Res, Manchester, Lancs, England
[5] Chapel Allerton Hosp, Leeds Inst Rheumat & Musculoskeletal Med, Leeds, W Yorkshire, England
[6] Clin Univ St Luc, UCL, Brussels, Belgium
[7] Gaetano Pini Inst, Rheumatol, Milan, Italy
[8] KPMG LLP, Global Strategy Grp, London, England
[9] Univ Hosp Geneva, Dept Internal Med Specialties, Geneva, Switzerland
[10] Univ Utrecht, Utrecht, Netherlands
[11] Univ Cologne, Cologne, Germany
[12] Radboud Univ Nijmegen Med Ctr, Nijmegen, Netherlands
[13] Sint Maartensklin, Nijmegen, Netherlands
[14] Salisbury NHS Fdn Trust, Salisbury, Wilts, England
[15] Karolinska Inst, Rheumatol, Stockholm, Sweden
[16] Rigshosp, Ctr Rheumatol & Spine Dis, Copenhagen Ctr Arthrit Res, Copenhagen, Denmark
[17] Inst Rheumatol, Rheumatol Clin, Prague, Czech Republic
[18] Hosp Santa Maria, Lisbon, Portugal
[19] Karolinska Inst, Dept Med Solna, Resp Med Unit, Stockholm, Sweden
[20] Karolinska Inst, Ctr Mol Med, Stockholm, Sweden
[21] Karolinska Univ Hosp Solna, Karolinska Inst, Dept Resp Med & Allergy, Stockholm, Sweden
[22] Univ Paris 05, Hop Cochin, Rheumatol, Paris, France
来源
RMD OPEN | 2020年 / 6卷 / 02期
关键词
Rheumatoid Arthritis; Arthritis; Autoimmune diseases; BONE-MINERAL DENSITY; INFLAMMATORY JOINT DISEASES; INTERSTITIAL LUNG-DISEASE; CARDIOVASCULAR-DISEASE; EULAR RECOMMENDATIONS; RISK; MORTALITY; DEPRESSION; MANAGEMENT; PREVALENCE;
D O I
10.1136/rmdopen-2020-001211
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Objective Rheumatoid arthritis (RA) is a chronic autoimmune inflammatory disorder with a global prevalence of approximately 0.5-1%. Patients with RA are at an increased risk of developing comorbidities (eg, cardiovascular disease, pulmonary disease, diabetes and depression). Despite this, there are limited recommendations for the management and implementation of associated comorbidities. This study aimed to identify good practice interventions in the care of RA and associated comorbidities. Methods A combination of primary research (180+ interviews with specialists across 12 European rheumatology centres) and secondary research (literature review of existing publications and guidelines/recommendations) were used to identify challenges in management and corresponding good practice interventions. Findings were prioritised and reviewed by a group of 18 rheumatology experts including rheumatologists, comorbidity experts, a patient representative and a highly specialised nurse. Results Challenges throughout the patient pathway (including delays in diagnosis and referral, shortage of rheumatologists, limited awareness of primary care professionals) and 18 good practice interventions were identified in the study. The expert group segmented and prioritised interventions according to three distinct stages of the disease: (1) suspected RA, (2) recent diagnosis of RA and (3) established RA. Examples of good practice interventions included enabling self-management (self-monitoring and disease management support, for example, lifestyle adaptations); early arthritis clinic; rapid access to care (online referral, triage, ultrasound-guided diagnosis); dedicated comorbidity specialists; enhanced communication with primary care (hotline, education sessions); and integrating patient registries into daily clinical practice. Conclusion Learning from implementation of good practice interventions in centres across Europe provides an opportunity to more widely improved care for patients with RA and associated comorbidities.
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页数:12
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