共 50 条
- [2] Medical care to help improve the quality of life for children with rare diseases and their families [J]. REVISTA DE EDUCACION INCLUSIVA, 2014, 7 (03): : 14 - 32
- [6] RARE DISEASES AND THE QUALITY OF LIFE OF CAREGIVERS [J]. SOCIAL WELFARE INTERDISCIPLINARY APPROACH, 2012, 2 (01): : 8 - 17
- [7] Policy measures taken in Japan to improve the quality of life for patients with rare/intractable diseases [J]. EXPERT OPINION ON ORPHAN DRUGS, 2019, 7 (05): : 261 - 264
- [8] Influence of schooling on the health-related quality of life of children with rare diseases [J]. Health and Quality of Life Outcomes, 18
- [10] A wish list to improve postdoctoral life [J]. Nature Reviews Bioengineering, 2024, 2 (8): : 631 - 632