Quality of Life in Chronic Kidney Disease Children Using Assessment Pediatric Quality of Life Inventory™

Chronic kidney disease (CKD) is still a serious health problem in children with increasing morbidity and affecting children's quality of life (QoL). The prevalence of children with CKD worldwide is approximately 82 cases/year/1 million children. From the Indonesian Basic Health Survey 2013, the prevalence of patients with CKD aged >= 15 years in Indonesia was 0.2%. To assess the QoL in children with CKD as well as its relationship with duration of diagnosis, severity, and related demographic factors, a cross-sectional analytic study was conducted. Individuals were recruited from July 2016 to May 2017 through consecutive sampling. CKD children aged 2-18 years who treated with conservative therapy and hemodialysis were included. Patients and their parents were asked to fill out the PedsQL (TM) generic score scale version 4.0 questionnaire. A total of 112 children were recruited, and QoL was assessed from parental reports (54.5%) and children's reports (56.3%). The school and emotional aspects were the lowest score parameters studied. Factor related to QoL children with CKD were length of diagnosis >60 months (P = 0.004), female (P = 0.019), and middle school (P = 0.003). More than half of the children with CKD have disturbance of QoL in general from parental reports (54.5%) and children's reports (56.3%). Length of diagnosis >60 months, female, and middle school education were all related to the QoL children with CKD.