Pediatric and Congenital Cardiovascular Disease Research Challenges and Opportunities JACC Review Topic of the Week

被引：7

作者：

Opotowsky, Alexander R. ^{[1
]}

Allen, Kiona Y. ^{[2
]}

Bucholz, Emily M. ^{[3
]}

Burns, Kristin M. ^{[4
]}

Del Nido, Pedro ^{[5
]}

Fenton, Kathleen N. ^{[4
]}

Gelb, Bruce D. ^{[6
]}

Kirkpatrick, James N. ^{[7
,8
]}

Kutty, Shelby ^{[9
]}

Lambert, Linda M. ^{[10
]}

Lopez, Keila N. ^{[11
]}

Olivieri, Laura J. ^{[12
]}

Pajor, Nathan M. ^{[13
]}

Pasquali, Sara K. ^{[14
]}

Petit, Christopher J. ^{[15
]}

Sood, Erica ^{[16
,17
]}

VanBuren, John M. ^{[18
]}

Pearson, Gail D. ^{[4
]}

Miyamoto, Shelley D. ^{[19
]}

机构：

[1] Univ Cincinnati, Cincinnati Childrens Hosp, Heart Inst, Dept Pediat,Coll Med, Cincinnati, OH USA

[2] Feinberg Northwestern Univ, Ann & Robert H Lurie Childrens Hosp Chicago, Dept Pediat, Div Cardiol,Sch Med, Chicago, IL USA

[3] Boston Childrens Hosp, Dept Cardiol, Boston, MA USA

[4] NHLBI, Div Cardiovasc Sci, Bethesda, MD USA

[5] Boston Childrens Hosp, Dept Cardiac Surg, Boston, MA USA

[6] Icahn Sch Med Mt Sinai, Mindich Child Hlth & Dev Inst, New York, NY 10029 USA

[7] Univ Washington, Dept Med, Med Ctr, Seattle, WA USA

[8] Univ Washington, Med Ctr, Dept Bioeth & Humanities, Seattle, WA 98195 USA

[9] Johns Hopkins Sch Med, Blalock Taussig Thomas Pediat & Congenital Heart, Dept Pediat, Baltimore, MD USA

[10] Univ Utah, Div Pediat Cardiothorac Surg, Salt Lake City, UT USA

[11] Texas Childrens Hosp, Baylor Coll Med, Dept Pediat, Lillie Frank Abercrombie Sect Pediat Cardiol, Houston, TX USA

[12] Univ Pittsburgh, Childrens Hosp Pittsburgh, Dept Pediat Cardiol, Med Ctr, Pittsburgh, PA USA

[13] Univ Cincinnati, Cincinnati Childrens Hosp, Div Pulm Med, Coll Med, Cincinnati, OH USA

[14] Univ Michigan, Div Pediat Cardiol, CS Mott Childrens Hosp, Ann Arbor, MI USA

[15] Columbia Univ, Morgan Stanley Childrens Hosp, Dept Pediat, Div Pediat Cardiol,Vagelos Coll Phys & Surg, New York, NY USA

[16] Nemours Childrens Hlth, Nemours Cardiac Ctr, Delaware, OH USA

[17] Nemours Childrens Hlth, Div Behav Hlth, Delaware, OH USA

[18] Univ Utah, Dept Pediat, Sch Med, Salt Lake City, UT USA

[19] Univ Colorado, Dept Pediat, Childrens Hosp Colorado, Anschutz Med Campus, Aurora, CO USA

来源：

JOURNAL OF THE AMERICAN COLLEGE OF CARDIOLOGY | 2022年 / 80卷 / 23期

关键词：

collaborative science; congenital heart disease; lifespan; outcomes; research; PATIENT-REPORTED OUTCOMES; HEART-DISEASE; UNITED-STATES; ADULTS; CARE; HOSPITALIZATIONS; PERSPECTIVE; SURGERY; HEALTH;

D O I：

10.1016/j.jacc.2022.09.032

中图分类号：

R5 [内科学];

学科分类号：

1002 ; 100201 ;

摘要：

The National Heart, Lung, and Blood Institute convened a workshop in August 2021 to identify opportunities in pediatric and congenital cardiovascular research that would improve outcomes for individuals with congenital heart disease across the lifespan. A subsidiary goal was to provide feedback on and visions for the Pediatric Heart Network. This paper summarizes several key research opportunities identified in the areas of: data quality, access, and sharing; aligning cardiovascular research with patient priorities (eg, neurodevelopmental and psychological impacts); integrating research within clinical care and supporting implementation into practice; leveraging creative study designs; and proactively enriching diversity of investigators, participants, and perspectives throughout the research process. (c) 2022 the American College of Cardiology Foundation. Published by Elsevier. All rights reserved.

引用

页码：2239 / 2250

页数：12

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