Developing outcome measures for paediatric rheumatic diseases

被引：42

作者：

Brunner, Hermine I. ^{[1
]}

Ravelli, Angelo ^{[2
,3
]}

机构：

[1] Univ Cincinnati, Cincinnati Childrens Hosp, Med Ctr, William Rowe Div Rheumatol, Cincinnati, OH 45229 USA

[2] Univ Genoa, Dipartimento Sci Pediat G De Toni, Genoa, Italy

[3] Ist Ricovero & Cura Carattere Sci G Gaslini, Genoa, Italy

来源：

BEST PRACTICE & RESEARCH IN CLINICAL RHEUMATOLOGY | 2009年 / 23卷 / 05期

关键词：

response criteria; flare; remission; consensus methodology; juvenile idiopathic arthritis; juvenile systemic lupus erythematosus; juvenile dermatomyositis; JUVENILE IDIOPATHIC ARTHRITIS; HEALTH-ASSESSMENT QUESTIONNAIRE; SYSTEMIC-LUPUS-ERYTHEMATOSUS; CLINICS AMERICAN-COLLEGE; MYOSITIS ASSESSMENT SCALE; ACCEPTABLE SYMPTOM STATE; DAMAGE INDEX; INFLAMMATORY MYOPATHIES; PROSPECTIVE VALIDATION; INITIAL VALIDATION;

D O I：

10.1016/j.berh.2009.07.001

中图分类号：

R5 [内科学];

学科分类号：

1002 ; 100201 ;

摘要：

This review provides a theoretical background and approach for developing outcome measures that are often used to assess the state and course of paediatric rheumatic diseases. It describes the important steps in scale development such as item generation and reduction, the assessment of scale reliability and various forms of validation. The second part of this review described the newly developed outcome measures as well as their state of validation. These outcome measures include therapeutic response measures, composite disease activity scores for juvenile idiopathic arthritis (JIA), global disease activity tools for juvenile systemic lupus erythematosus and juvenile dermatomyositis, disease status measures in JIA, measures of physical function, measures of health-related quality of life, clinical measures of damage and radiographic scoring systems in JIA. (C) 2009 Elsevier Ltd. All rights reserved.

引用

页码：609 / 624

页数：16

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