Unmet needs and health-related quality of life of dementia family caregivers transitioning from home to long-term care: A scoping review

This scoping review is to identify experiences, unmet needs, and health-related quality of life (HRQoL) of family caregivers transitioning their care recipients with dementia into long-term care (LTC). The methodo-logical framework of Arksey and O'Malley guided the review. Themes from nineteen selected studies were organized around three categories. First, caregiver experiences during LTC placement featured challenges around placement decision-making and distress and changes in relationships and responsibilities. Second, unmet needs of caregivers were desired emotional support and information about transitions. Finally, care-givers' HRQoL varies around transition. Family caregivers experience unique challenges and can have unmet needs during the LTC placement of their care recipients with dementia. Findings suggest the need for inter-ventions that teach skills, care planning, assistance with conflict resolution, communication training, and guidance finding services and resources. (c) 2021 Elsevier Inc. All rights reserved.