Factors associated with the empowerment of Japanese families raising a child with developmental disorders

被引:40
|
作者
Wakimizu, Rie [1 ]
Fujioka, Hiroshi [2 ]
Yoneyama, Akira [3 ]
Iejima, Atsushi [4 ]
Miyamoto, Shinya [5 ]
机构
[1] Univ Tsukuba, Grad Sch Comprehens Human Sci, Inst Nursing Sci, Dept Child Hlth Care & Nursing, Tsukuba, Ibaraki, Japan
[2] Chiba Prefectural Univ Hlth Sci, Dept Nursing, Chiba, Japan
[3] Natl Rehabil Ctr Disabled Children, Dept Pediat, Tokyo, Japan
[4] Ibaraki Disabled Childrens Hosp, Dept Pediat, Mito, Ibaraki, Japan
[5] Univ Tsukuba, Grad Sch Comprehens Human Sci, Inst Disabil Sci, Dept Dev Behav Pediat, Tsukuba, Ibaraki, Japan
关键词
Child-rearing; Developmental disorders; Family empowerment; Family support; PARENTS; AUTISM; STRESS; DISABILITIES; VERSION; STYLES; MODEL;
D O I
10.1016/j.ridd.2011.01.037
中图分类号
G76 [特殊教育];
学科分类号
040109 ;
摘要
We identified factors associated with the empowerment of Japanese families using the Family Empowerment Scale (FES) to contribute to the improvement of empowerment in Japanese families raising a child with developmental disorders (DDs). The study was conducted in 350 caregivers who raised children aged 4-18 years with DDs in urban and suburban districts in Japan. Multiple regression analysis of data collected from 275 respondents revealed that a decrease in family empowerment level correlated with a higher number of siblings reared together, a shorter period since the diagnosis was made, and lower awareness of social support and self-efficacy in caregivers. Medications, possession of an intellectual disability certificate, infrequent hospital visits of the child, disuse of local services by caregivers, and young caregivers also correlated with a lower level of empowerment in the Japanese family. (C) 2011 Elsevier Ltd. All rights reserved.
引用
收藏
页码:1030 / 1037
页数:8
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