Relations among school/daycare functioning, fear of hypoglycaemia and quality of life in parents of young children with type 1 diabetes

被引:36
|
作者
Herbert, Linda J. [1 ]
Clary, Lauren [2 ]
Owen, Victoria [1 ]
Monaghan, Maureen [1 ]
Alvarez, Vanessa [1 ]
Streisand, Randi [1 ]
机构
[1] Childrens Natl Hlth Syst, Ctr Translat Sci, Washington, DC 20010 USA
[2] Childrens Natl Hlth Syst, Div Endocrinol & Diabet, Washington, DC 20010 USA
关键词
diabetes management; hypoglycaemia; quality of life; type; 1; diabetes; young children; SPECIAL NEEDS; MANAGEMENT; PERCEPTIONS; MELLITUS; CARE;
D O I
10.1111/jocn.12658
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
Aims and objectivesTo investigate the type 1 diabetes-related school/daycare experiences of parents of young children and to examine the relationship among child school/daycare functioning, parent fear of hypoglycaemia and parent type 1 diabetes-related quality of life. BackgroundParents of young children who attend school/daycare must rely on others for daily type 1 diabetes management. Worry about school/daycare type 1 diabetes management may cause parental distress and contribute to diminished parent quality of life. Parental concerns about type 1 diabetes management in young children in the school/daycare setting have not been well described in the literature. DesignDescriptive correlational and cross-sectional parent report of questionnaires design. MethodsAs part of a randomised controlled trial for parents of young children with type 1 diabetes, 134 parents completed self-report measures at baseline. Data included demographic, school/daycare, and medical information, parent reports of child school/daycare functioning, parent fear of hypoglycaemia and parent type 1 diabetes-related quality of life. ResultsParents of younger children, children on a more intensive medical regimen and children who had experienced type 1 diabetes-related unconsciousness or seizures had more school/daycare concerns. Parents who perceived their children had higher school/daycare functioning had less fear about hypoglycaemia and reported better type 1 diabetes-related quality of life. School/daycare functioning and fear of hypoglycaemia were significantly associated with parent type 1 diabetes-related quality of life. ConclusionsParents' concerns about school/daycare functioning and fear of hypoglycaemia play an important role in parents' type 1 diabetes-related quality of life. Relevance to clinical practiceMembers of the healthcare team should be aware of concerns related to children attending school/daycare and provide additional support as warranted.
引用
收藏
页码:1199 / 1209
页数:11
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