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Disclosing Disorders of Sex Development and Opening the Doors
被引:21
|作者:
D'Alberton, F.
[1
]
机构:
[1] Azienda Univ Osped Bologna, Dept Pediat, Policlin S Orsola Malpighi, IT-40138 Bologna, Italy
关键词:
DSD;
Full disclosure;
Informed consent;
ANDROGEN INSENSITIVITY SYNDROME;
MANAGEMENT;
CHILDHOOD;
GENITALIA;
INTERSEX;
SURGERY;
SERVICE;
D O I:
10.1159/000317480
中图分类号:
Q [生物科学];
学科分类号:
07 ;
0710 ;
09 ;
摘要:
This paper focuses on the importance of full disclosure in disorders of sex development (DSD), as a universal human right and closely related to informed consent. Full disclosure is not only a way of communicating a diagnosis, it is a methodological constant that permeates all the clinical moments expressed by a multidisciplinary team. As stated by The Chicago consensus, DSD should be referred to specialized centers of excellence. In these centers provided with the necessary multidisciplinary team that is able to: provide knowledge, skills and experience; deliver quality and care, and cope with the emotional barriers that often hinder the practice of full disclosure. Full disclosure is important when a person is informed about something, can participate in making a decision or is advised about something that needs to be done before he/she will be able to make a choice. However, if a person is informed about something that was done unnecessarily and could have been postponed until he/she could have been involved in making the decision, full disclosure can be seen as deception colored by rage, sorrow and regret. Copyright (c) 2010 S. Karger AG, Basel
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页码:304 / 309
页数:6
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