Health Care Transition for Youth Living With HIV/AIDS

被引:111
|
作者
Dowshen, Nadia [1 ,2 ]
D'Angelo, Lawrence [3 ,4 ]
机构
[1] Childrens Hosp Philadelphia, Craig Dalsimer Div Adolescent Med, Philadelphia, PA 19104 USA
[2] Univ Penn, Sch Med, Dept Pediat, Philadelphia, PA 19104 USA
[3] Childrens Natl Med Ctr, Div Adolescent & Young Adult Med, Washington, DC 20010 USA
[4] George Washington Univ, Sch Med, Dept Pediat, Washington, DC 20052 USA
关键词
HIV-RELATED STIGMA; YOUNG-ADULTS; PSYCHIATRIC-DISORDERS; MEDICATION ADHERENCE; POSITION PAPER; ADOLESCENTS; EXPERIENCES; INFECTION; SERVICES; SOCIETY;
D O I
10.1542/peds.2011-0068
中图分类号
R72 [儿科学];
学科分类号
100202 ;
摘要
There are similar to 1 million people in the United States living with HIV/AIDS, and >50 000 new infections occur each year. With an estimated 13% of all new infections occurring among young people aged 13 to 24 years and an increasing number of perinatally infected youth surviving to adulthood, there is now an increasing need to transition both perinatally and behaviorally infected youth to the adult health care setting. Recently, pediatric providers and professional societies have prioritized the development of transition programs for adolescents with chronic disease to address the many challenges these youth face in the process. Although multiple position papers have called for continuous, coordinated, culturally appropriate, compassionate, family-centered transition programs for youth with special health care needs and have recognized the need for evidence-based models, few data exist on what strategies are most effective. To date, published data on health care transition for HIV-positive youth are limited and include only 2 studies, which considered behaviorally infected youth. In this state-of-the-art review, we discuss the unique transition challenges to consider for this population, including socioeconomic and health insurance status, the special role of the pediatric or adolescent provider as family, stigma and disclosure issues, cognitive development and mental health issues, medication adherence, and sexual, reproductive, and gender health concerns. Future research will need to include the experiences of transition in low-resource settings and examine clinical outcomes and factors that may predict success or failure of the transition process. Pediatrics 2011;128:762-771
引用
收藏
页码:762 / 771
页数:10
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