Cancer-specific distress, supportive care needs and satisfaction with psychosocial care in young adult cancer survivors

Purpose: Identification of cancer-specific distress, supportive care needs, and satisfaction with psychosocial care in young adult cancer survivors. Methods: 117 young adults diagnosed with cancer (AYA), aged between 18 and 39 years old at the time of the survey completed questionnaires to measure cancer-specific distress (QSC-R23) and supportive care needs (SCNS-SF34), as well as their utilization of and satisfaction with psychosocial care after acute medical treatment (0-5 years). Differences between two survivor groups (<= 2 years from diagnosis and > 2 years from diagnosis) were assessed. Results: Participants reported slight cancer-specific distress (M = 1.22; SD = 0.85) and had the highest scores in the fears domain (M = 1.90; SD = 1.33). AYA survivors <= 2 years from diagnosis (M = 39.82; SD = 26.33) and survivors > 2 years from diagnosis (M = 25.68; SD = 27.97) most often reported their psychological supportive care needs as being unmet followed by their health system/information and sexuality support needs. Unmet needs were positively associated with cancer-specific distress (R-2 = 0.694). More than half of the AYA cancer survivors in both groups used social legal counselling (N = 67/117, 57.3%) and psychological counselling (N = 65/117, 55.6%) and were mostly highly satisfied with those services. Conclusion: It is important to provide psychological supportive care to AYA cancer survivors, a patient group that is very open to taking advantage of such services. This should be taken into account when implementing specific psychosocial follow-up care as early as possible to decrease reported unmet needs. Cancer-related fears seem to remain a salient issue for patients even long after they have completed treatment.