No expectation to share incidental findings in genomic research

被引:15
|
作者
Middleton, Anna [1 ]
Morley, Katherine I. [2 ,3 ]
Bragin, Eugene [1 ]
Firth, Helen V. [4 ]
Hurles, Matthew E. [1 ]
Wright, Caroline F. [1 ]
Parker, Michael [5 ]
机构
[1] Wellcome Trust Sanger Inst, Human Genet, Cambridge CB10 1SA, England
[2] Kings Coll London, Inst Psychiat, Addict Dept, London WC2R 2LS, England
[3] Univ Melbourne, Ctr Mol Environm Genet & Analyt Epidemiol, Melbourne Sch Populat & Global Hlth, Melbourne, Vic, Australia
[4] Addenbrookes Hosp, Dept Clin Genet, Cambridge, England
[5] Univ Oxford, Nuffield Dept Populat Hlth, Ethox Ctr, Oxford, England
来源
LANCET | 2015年 / 385卷 / 9975期
基金
英国惠康基金;
关键词
D O I
10.1016/S0140-6736(14)62119-X
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
引用
收藏
页码:1289 / 1290
页数:3
相关论文
共 50 条
  • [1] Genomic research and incidental findings
    Van Ness, Brian
    JOURNAL OF LAW MEDICINE & ETHICS, 2008, 36 (02): : 292 - +
  • [2] MODELS OF CONSENT TO RETURN OF INCIDENTAL FINDINGS IN GENOMIC RESEARCH
    Appelbaum, Paul S.
    Parens, Erik
    Waldman, Cameron R.
    Klitzman, Robert
    Fyer, Abby
    Martinez, Josue
    Price, W. Nicholson, II
    Chung, Wendy K.
    HASTINGS CENTER REPORT, 2014, 44 (04) : 22 - 32
  • [3] Informed consent for return of incidental findings in genomic research
    Appelbaum, Paul S.
    Waldman, Cameron R.
    Fyer, Abby
    Klitzman, Robert
    Parens, Erik
    Martinez, Josue
    Price, W. Nicholson, II
    Chung, Wendy K.
    GENETICS IN MEDICINE, 2014, 16 (05) : 367 - 373
  • [4] Dialogues, dilemmas, and disclosures: genomic research and incidental findings
    Bush, Lynn W.
    Rothenberg, Karen H.
    GENETICS IN MEDICINE, 2012, 14 (03) : 293 - 295
  • [5] Research participant interest in primary, secondary, and incidental genomic findings
    Loud, Jennifer T.
    Bremer, Renee C.
    Mai, Phuong L.
    Peters, June A.
    Giri, Neelam
    Stewart, Douglas R.
    Greene, Mark H.
    Alter, Blanche P.
    Savage, Sharon A.
    GENETICS IN MEDICINE, 2016, 18 (12) : 1218 - 1225
  • [6] Ethical Considerations for the Return of Incidental Findings in Ophthalmic Genomic Research
    Souzeau, Emmanuelle
    Burdon, Kathryn P.
    Mackey, David A.
    Hewitt, Alex W.
    Savarirayan, Ravi
    Otlowski, Margaret
    Craig, Jamie E.
    TRANSLATIONAL VISION SCIENCE & TECHNOLOGY, 2016, 5 (01): : 1 - 11
  • [7] Ethics and Genomic Incidental Findings
    McGuire, Amy L.
    Joffe, Steven
    Koenig, Barbara A.
    Biesecker, Barbara B.
    McCullough, Laurence B.
    Blumenthal-Barby, Jennifer S.
    Caulfield, Timothy
    Terry, Sharon F.
    Green, Robert C.
    SCIENCE, 2013, 340 (6136) : 1047 - 1048
  • [8] Systematic Review of the Economic Evaluation of Returning Incidental Findings in Genomic Research
    Fontes Marx, Mayara
    Ataguba, John E.
    de Vries, Jantina
    Wonkam, Ambroise
    FRONTIERS IN PUBLIC HEALTH, 2021, 9
  • [9] Genomic Test Validation for Incidental Findings
    Park, Jason Y.
    Fortina, Paolo
    Kricka, Larry J.
    CLINICAL CHEMISTRY, 2014, 60 (02) : 292 - 293
  • [10] Disclosure of incidental findings in cancer genomic research: investigators' perceptions on obligations and barriers
    Kleiderman, E.
    Avard, D.
    Besso, A.
    Ali-Khan, S.
    Sauvageau, G.
    Hebert, J.
    CLINICAL GENETICS, 2015, 88 (04) : 320 - 326