Legal Implications of Stroke Biobanking and Genomics Research in Sub-Saharan Africa

被引:0
|
作者
Adigun, Muyiwa [1 ]
Ojebuyi, Babatunde Raphael [2 ]
Akinyemi, Joshua [3 ]
Wahab, Kolawole [4 ]
Akpalu, Albert [5 ]
Sarfo, Fred S. [6 ]
Owolabi, Lukman F. [7 ]
Musbahu, Rabiu [7 ]
Bello, Abiodun [8 ]
Obiako, Reginald [9 ]
Ogunronbi, Mayowa [10 ]
Singh, Arti [11 ]
Nichols, Michelle [12 ]
Jenkins, Carolyn [12 ]
Jegede, Ayodele [13 ]
Kalaria, Rajesh [14 ]
Owolabi, Mayowa [15 ]
Ovbiagele, Bruce [16 ]
Arulogun, Oyedunni [17 ]
Akinyemi, Rufus [10 ]
机构
[1] Univ Ibadan, Dept Publ Law, Ibadan, Nigeria
[2] Univ Ibadan, Dept Commun & Language Arts, Ibadan, Nigeria
[3] Univ Ibadan, Dept Epidemiol & Med Stat, Ibadan, Nigeria
[4] Univ Ilorin, Neurol Unit, Ilorin, Nigeria
[5] Univ Ghana, Med Sch, Accra, Ghana
[6] Kwame Nkrumah Univ Sci & Technol, Neurol Unit, Kumasi, Ghana
[7] Bayero Univ, Neurol Unit, Kano, Nigeria
[8] Univ Ilorin, Dept Med, Neurol Unit, Ilorin, Nigeria
[9] Ahmadu Bello Univ, Neurol Unit, Teaching Hosp, Zaria, Nigeria
[10] Univ Ibadan, Neurosci & Ageing Res Unit, Ibadan, Nigeria
[11] Kwame Nkrumah Univ Sci & Technol, Sch Publ Hlth, Kumasi, Ghana
[12] Med Univ South Carolina, Coll Nursing, Columbia, SC USA
[13] Univ Ibadan, Dept Sociol, Ibadan, Nigeria
[14] Newcastle Univ, Neurovasc Res Grp, Newcastle Upon Tyne, Tyne & Wear, England
[15] Univ Ibadan, Dept Med, Ibadan, Nigeria
[16] Univ Calif San Francisco, Weill Inst Neurosci, San Francisco, CA 94143 USA
[17] Univ Ibadan, Dept Hlth Promot & Educ, Ibadan, Nigeria
基金
美国国家卫生研究院;
关键词
stroke; biobanking; genomics research; Sub-Saharan Africa; ethical guidelines; SURVIVAL; DISEASE; PRINCIPLES; AUTONOMY; RESPECT; PRIVACY; NIGERIA; TRENDS; 1ST;
D O I
暂无
中图分类号
D9 [法律]; DF [法律];
学科分类号
0301 ;
摘要
Stroke is a major cause of death in Sub-Saharan Africa (SSA) and genetic factors appear to play a part. This has led to stroke biobanking and genomics research in SSA. Existing stroke studies have focused on causes, incidence rates, fatalities and effects. However, scant attention has been paid to the legal issues in stroke biobanking and genomics research in the sub-region. Therefore, this article examines the legal implications of stroke biobanking and genomics research in SSA. The article adopts a textual analysis of primary and secondary sources in law. It reports that there are laws from the perspectives of human right, the common law, and intellectual property. However, there are gaps to be filled. The article therefore argues for legislative intervention. It concludes that pending the time the statute will be enacted, genomics researchers in Africa should adopt the ethical guidelines prepared by Human Heredity and Health in Africa (H3 Africa).
引用
收藏
页码:579 / 598
页数:20
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