Measuring Health-Related Quality of Life in Pediatric Neurology

被引：11

作者：

Lemmon, Monica E. ^{[1
,2
,3
]}

Huffstetler, Hanna E. ^{[2
]}

Reeve, Bryce B. ^{[1
,2
,3
,4
]}

机构：

[1] Duke Univ, Med Ctr, Dept Pediat, Durham, NC 27710 USA

[2] Duke Univ, Margolis Ctr Hlth Policy, Durham, NC USA

[3] Duke Univ, Sch Med, Dept Populat Hlth Sci, Durham, NC USA

[4] Duke Univ, Sch Med, Ctr Hlth Measurement, Durham, NC USA

来源：

JOURNAL OF CHILD NEUROLOGY | 2020年 / 35卷 / 10期

基金：

美国国家卫生研究院;

关键词：

health-related quality of life; neurology; pediatrics; MEASUREMENT INFORMATION-SYSTEM; REPORTED OUTCOME MEASURES; CEREBRAL-PALSY; PSYCHOMETRIC PROPERTIES; CHILDREN; ADOLESCENTS; INSTRUMENTS; RELIABILITY; VALIDATION; QUESTIONNAIRES;

D O I：

10.1177/0883073820923809

中图分类号：

R74 [神经病学与精神病学];

学科分类号：

摘要：

Health-related quality of life (HRQOL) is central to how clinicians and parents make choices about medical care for pediatric neurology patients. To provide parents with the information they need to make these decisions and plan for the future, it is necessary for parents and clinicians to understand how HRQOL is defined and measured in the setting of pediatric neurodevelopmental impairment. We review challenges that exist in measuring HRQOL in pediatric neurology, examine existing measures, and outline key principles to guide selection and interpretation of HRQOL measures in children with neurologic conditions.

引用

页码：681 / 689

页数：9

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