Social support to the families of children with cerebral palsy

被引：11
|
作者：
Dezoti, Ana Paula [1 ]
Cosvoski Alexandre, Ana Maria [1 ]
de Souza Freire, Marcia Helena [1 ]
Alves das Merces, Nen Nalu [1 ]
Mazza, Veronica de Azevedo [1 ]
机构：
[1] Univ Fed Parana, BR-80060000 Curitiba, Parana, Brazil
来源：
ACTA PAULISTA DE ENFERMAGEM | 2015年 / 28卷 / 02期
关键词：
Cerebral palsy; Social support; Pediatric nursing; Nursing primary care; Disabled child;
D O I：
10.1590/1982-0194201500029
中图分类号：
R47 [护理学];
学科分类号：
1011 ;
摘要：
Objective: To describe the experience of the families of children with cerebral palsy concerning their social support network. Methods: Qualitative research carried out with 19 families of children with cerebral palsy. Focal group sessions were performed and statements were recorded, thoroughly transcribed and assessed by the thematic analysis technique. Results: The following thematic categories emerged: Experience of the family in caring for the child with cerebral palsy, and Frail social support concerning family bonds. Conclusion: The social support network of the families of children with cerebral palsy is basically comprised of family members. Families undergo changes in their daily life and experience unfavorable feelings, seeking in the spiritual realm the hope to cope with adversities.
引用
收藏
页码：172 / 176
页数：5
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