The challenges of storytelling in rare diseases

被引:0
|
作者
Gross, Olivia [1 ]
机构
[1] Univ Sorbonne Paris Nord, Chaire Rech Engagement Patients, LEPS, UR 3412,UFR Sante Med & Biol Humaine, Paris, France
来源
SANTE PUBLIQUE | 2021年 / 33卷 / 03期
关键词
D O I
10.3917/spub.213.0309
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
引用
收藏
页码:309 / 310
页数:2
相关论文
共 50 条
  • [1] Rare diseases, common challenges
    不详
    NATURE GENETICS, 2022, 54 (03) : 215 - 215
  • [2] Epidemiologic challenges in rare diseases
    Rueckinger, S.
    Boneberger, A.
    BUNDESGESUNDHEITSBLATT-GESUNDHEITSFORSCHUNG-GESUNDHEITSSCHUTZ, 2008, 51 (05) : 483 - 490
  • [3] Challenges of rare diseases in China
    Dong, Dong
    Wang, Yiou
    LANCET, 2016, 387 (10031): : 1906 - 1906
  • [4] Rare diseases, common challenges
    Nature Genetics, 2022, 54 : 215 - 215
  • [5] Rare diseases - progress and challenges
    Eliasdottir, Olof Jona
    LAEKNABLADID, 2024, 110 (03): : 133 - 133
  • [6] The challenges of clinical trials in rare diseases
    Mellerio, Jemima E.
    BRITISH JOURNAL OF DERMATOLOGY, 2022, 187 (04) : 453 - 454
  • [7] Challenges and opportunities in the studies on rare diseases
    Wu, Zhanhe
    TRANSLATIONAL PEDIATRICS, 2015, 4 (03): : 239 - 239
  • [8] Needles in haystacks: the challenges of rare diseases
    Jinnah, Hyder A.
    DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY, 2011, 53 (01): : 6 - 7
  • [9] Challenges of economic evaluation in rare diseases
    Duckett, Stephen
    JOURNAL OF MEDICAL ETHICS, 2022, 48 (02) : 93 - 94
  • [10] Progress, challenges and global approaches to rare diseases
    Groft, Stephen C.
    Posada, Manuel
    Taruscio, Domenica
    ACTA PAEDIATRICA, 2021, 110 (10) : 2711 - 2716