Translation, cross-cultural adaptation and validation of the vitiligo-specific health-related quality of life instrument (VitiQoL) into Polish

被引:3
|
作者
Iwanowski, Tomasz [1 ]
Szlazak, Piotr [1 ]
Zablotna, Monika [2 ]
Olszewska, Berenika [2 ]
Sokolowska-Wojdylo, Malgorzata [2 ]
机构
[1] Dermedica, Gdansk, Poland
[2] Med Univ Gdansk, Dept Dermatol Venerol & Allergol, Gdansk, Poland
来源
POSTEPY DERMATOLOGII I ALERGOLOGII | 2021年 / 38卷 / 04期
关键词
indicators of quality of life; quality of life; vitiligo; INDEX;
D O I
10.5114/ada.2021.108896
中图分类号
R392 [医学免疫学];
学科分类号
100102 ;
摘要
Introduction: Vitiligo is an acquired chronic depigmenting disorder of the skin, predominantly asymptomatic. Although vitiligo does not cause direct physical impairment, it is commonly believed that it can produce an important psychosocial burden. Aim: To translate, cross-culturally adapt and validate the vitiligo-specific health-related quality of life instrument (VitiQoL) into Polish. Material and methods: The study was conducted online on 97 patients with vitiligo from our private outpatient departments in Gdynia and Gdansk, Poland from May 2018 to December 2019. Results: There was a significant correlation between VitiQoL and DLQI (r = 0.90, p < 0.001) and also between VitiQoL-PL and subjects' assessment of the severity of their disease (r = 0.94, p < 0.001). We also found a good correlation between the total DLQI and subjects' assessment of the severity of their disease (r = 0.87, p < 0.001). Conclusions: The physicians treating this disease still do not have a specific instrument for assessing patients' QoL in Poland. They have to administer other non-vitiligo specific questionnaires to do so. A Polish version of a specific index for estimating quality of life of patients with vitiligo was validated and implemented through an online survey.
引用
收藏
页码:636 / 643
页数:8
相关论文
共 50 条
  • [1] Translation, cross-cultural adaptation and validation of the vitiligo-specific health-related quality of life instrument (VitiQoL) into Brazilian Portuguese
    Boza, Juliana Catucci
    Kundu, Roopal V.
    Fabbrin, Amanda
    Horn, Roberta
    Giongo, Natalia
    Cestari, Tania Ferreira
    [J]. ANAIS BRASILEIROS DE DERMATOLOGIA, 2015, 90 (03) : 358 - 362
  • [2] Development and validation of a vitiligo-specific quality-of-life instrument (VitiQoL)
    Lilly, Evelyn
    Lu, Phoebe D.
    Borovicka, Judy H.
    Victorson, David
    Kwasny, Mary J.
    West, Dennis P.
    Kundu, Roopal V.
    [J]. JOURNAL OF THE AMERICAN ACADEMY OF DERMATOLOGY, 2013, 69 (01) : E11 - E18
  • [3] Development and validation of a vitiligo-specific health-related quality of life (VHRQoL) instrument
    Borovicka, Judy H.
    West, Dennis P.
    Kwasny, Mary
    Lu, Phoebe D.
    Kundu, Roopal V.
    [J]. JOURNAL OF THE AMERICAN ACADEMY OF DERMATOLOGY, 2011, 64 (02) : AB142 - AB142
  • [4] Cross-cultural adaptation and validation of a Spanish version of a specific instrument to measure health-related quality of life in patients with ankylosing spondylitis
    Ariza-Ariza, R.
    Hernandez-Cruz, B.
    Lopez-Antequera, G.
    Toyos, F. J.
    Navarro-Sarabia, F.
    [J]. REUMATOLOGIA CLINICA, 2006, 2 (02): : 64 - 69
  • [5] Paediatric health-related quality of life instrument for primary school children:: cross-cultural validation
    Laaksonen, Camilla
    Aromaa, Minna
    Heinonen, Olli J.
    Suominen, Sakari
    Salanterae, Sanna
    [J]. JOURNAL OF ADVANCED NURSING, 2007, 59 (05) : 542 - 550
  • [6] QUALITATIVE STUDY OF THE VITILIGO-SPECIFIC QUALITY OF LIFE (VITIQOL) MEASURE AMONG ADOLESCENTS AND ADULTS WITH VITILIGO
    Kundu, R.
    Daly, R. P.
    Gandhi, K.
    Coskun, U.
    Winnette, R.
    Newton, L.
    Sikirica, V
    [J]. VALUE IN HEALTH, 2020, 23 : S374 - S375
  • [7] Spanish translation, cultural adaptation and validation of the SarQoL®: a specific health-related quality of life questionnaire for sarcopenia
    Beatriz Montero-Errasquín
    Nieves Vaquero-Pinto
    Vicente Sánchez-Cadenas
    Anton Geerinck
    Elisabet Sánchez-García
    Jesús Mateos-Nozal
    José Manuel Ribera-Casado
    Alfonso J. Cruz-Jentoft
    [J]. BMC Musculoskeletal Disorders, 23
  • [8] Spanish translation, cultural adaptation and validation of the SarQoL®: a specific health-related quality of life questionnaire for sarcopenia
    Montero-Errasquin, Beatriz
    Vaquero-Pinto, Nieves
    Sanchez-Cadenas, Vicente
    Geerinck, Anton
    Sanchez-Garcia, Elisabet
    Mateos-Nozal, Jesus
    Manuel Ribera-Casado, Jose
    Cruz-Jentoft, Alfonso J.
    [J]. BMC MUSCULOSKELETAL DISORDERS, 2022, 23 (01)
  • [9] GUIDELINES FOR THE CROSS-CULTURAL ADAPTATION OF HEALTH-RELATED QUALITY-OF-LIFE MEASURES
    GUILLEMIN, F
    BOMBARDIER, C
    BEATON, D
    [J]. QUALITY OF LIFE RESEARCH, 1994, 3 (01) : 42 - 42
  • [10] Translation, cross-cultural adaptation and validation of the Quality of Life Evaluation in Epidermolysis Bullosa instrument in Brazilian Portuguese
    Cestari, Tania
    Prati, Clarissa
    Menegon, Doris B.
    Oliveira, Zilda N. Prado
    Machado, Maria Cecilia R.
    Dumet, Juliana
    Nakano, Juliana
    Murrell, Dedee F.
    [J]. INTERNATIONAL JOURNAL OF DERMATOLOGY, 2016, 55 (02) : E94 - E99