DEAF PARENTS AND PEDIATRIC COCHLEAR IMPLANTATION: AN EXPLORATION OF THE DECISION-MAKING PROCESS

被引:23
|
作者
Hardonk, Stefan [1 ]
Daniels, Sarah [1 ]
Desnerck, Greetje [2 ]
Loots, Gerrit [3 ,4 ,5 ]
Van Hove, Geert [4 ]
Van Kerschaver, Erwin
Sigurjonsdottir, Hanna Bjorg [6 ]
Vanroelen, Christophe [1 ]
Louckx, Fred [1 ]
机构
[1] Vrije Univ Brussel, Dept Med Sociol, Brussels, Belgium
[2] Howest Univ Coll, Brugge, Belgium
[3] Vrije Univ, Dept Clin & Lifespan Psychol, Ctr Interpersonal Discurs & Narrat Studies, Amsterdam, Netherlands
[4] Univ Ghent, Dept Special Educ, Ghent, Belgium
[5] Bolivian Catholic Univ San Pablo, Res Inst Behav Sci, Dept Psychol, La Paz, Bolivia
[6] Univ Iceland, Ctr Disabil Studies, Reykjavik, Iceland
关键词
HEARING; CHILDREN; NEWBORN; COMMUNICATION; ETHICS; DISTRESS; SERVICES; LANGUAGE; FLANDERS; SURGERY;
D O I
10.1353/aad.2011.0027
中图分类号
G76 [特殊教育];
学科分类号
040109 ;
摘要
THE STUDY examined factors in deaf parents' decision between cochlear implantation (CI) and traditional hearing aids for their child. The subjects were 6 Flemish children ages 5-9 years with severe/profound congenital hearing loss, with at least 1 deaf parent. The researchers, who conducted thematic content analysis of qualitative data collected through parent interviews, found that with the exception of a family with 1 hearing parent, parents gave priority to Deaf identity sign language, and ethical issues in deciding between CI and hearing aids. Medical risks were also mentioned. The researchers conclude that the decision-making processes of the parents involved factors that have also been found among hearing parents, as well as aspects that have not been reported to play a role in hearing parents' decision making. A further conclusion is that deaf parents' perspective merits attention in professional practice and empirical research.
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页码:290 / 304
页数:15
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