Belgian siblings of children with a chronic illness: Is their quality of life different from their peers?

被引:29
|
作者
Havermans, Trudy [1 ]
De Croock, Ilse [1 ]
Vercruysse, Trui [1 ]
Goethals, Eveline [1 ]
Van Diest, Ilse [2 ]
机构
[1] Univ Hosp Leuven, Herestr 49, B-3000 Leuven, Belgium
[2] Katholieke Univ Leuven, Leuven, Belgium
关键词
Chronic illness; impact of illness; quality of life; self-report; siblings; PEDIATRIC CANCER-PATIENTS; CHILDHOOD-CANCER; ADJUSTMENT; ADAPTATION; FAMILIES; DISEASE; IMPACT;
D O I
10.1177/1367493513503582
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
To assess Belgian siblings' self-reported quality of life (QoL) and the impact of illness on four different paediatric illnesses. Healthy siblings (n=131) of children with type 1 diabetes, cancer, congenital heart disease (CHD) and cystic fibrosis (CF) completed the Child Health Questionnaire and the Sibling Perception Questionnaire. Results were compared to those of a matched group of siblings of healthy children. Siblings reported a good QoL, similar to controls, with the exception that siblings reported better on the QoL domain pain (p<.01). QoL was not related to time since diagnosis but the impact of illness was higher nearer to the time of diagnosis (r=-.39, p<.001). QoL of siblings of children with CHD or cancer was lower than QoL in the CF or type 1 diabetes group whilst impact of illness was highest for the CHD group. QoL of siblings of a child with a chronic illness is similar to the QoL of peers. Studies investigating siblings' QoL or the impact of illness on siblings should include the day-to-day demands of the illness as well as less obvious illness-related issues like hidden stress' and sense of control'.
引用
收藏
页码:154 / 166
页数:13
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