Usability Testing of an Online Self-Management Program for Adolescents With Cancer

被引:32
|
作者
Stinson, Jennifer [1 ,2 ]
Gupta, Abha [3 ]
Dupuis, France [8 ]
Dick, Bruce [10 ]
Laverdiere, Caroline [9 ]
LeMay, Sylvie [8 ]
Sung, Lillian [4 ]
Dettmer, Elizabeth [5 ]
Gomer, Stephanie [6 ]
Lober, Janie [11 ]
Chan, Carol Y. [7 ]
机构
[1] Hosp Sick Children, Child Hlth Evaluat Sci, Toronto, ON M5G 0A4, Canada
[2] Hosp Sick Children, Chron Pain Program, Toronto, ON M5G 0A4, Canada
[3] Hosp Sick Children, Toronto, ON M5G 0A4, Canada
[4] Hosp Sick Children, Dept Hematol Oncol, Toronto, ON M5G 0A4, Canada
[5] Hosp Sick Children, STOMP Program, Toronto, ON M5G 0A4, Canada
[6] Hosp Sick Children, Nephrol Transplant Chest GI Nutr, Toronto, ON M5G 0A4, Canada
[7] Hosp Sick Children, Dept Child Hlth Evaluat Sci, Toronto, ON M5G 0A4, Canada
[8] Univ Montreal, Fac Nursing, Montreal, PQ, Canada
[9] Univ Montreal, Dept Pediat, Montreal, PQ H3C 3J7, Canada
[10] Univ Alberta, Ctr Multidisciplinary Pain, Edmonton, AB, Canada
[11] CHU St Justine, Montreal, PQ, Canada
基金
加拿大健康研究院;
关键词
adolescent; Internet; pediatric cancer; patient education; self-management; HEALTH-CARE; CHILDHOOD-CANCER; PSYCHOSOCIAL CARE; INTERVENTIONS; INTERNET; SURVIVORS; SUPPORT; INFORMATION; CHALLENGES; CHILDREN;
D O I
10.1177/1043454214543021
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
The objective of this study was to explore the usability of a bilingual (English and French) Internet-based self-management program for adolescents with cancer and their parents and refine the Internet program. A qualitative study design with semistructured, audio-taped interviews and observation was undertaken with 4 iterative cycles. A purposive sample of English-speaking and French-speaking adolescents with cancer and one of their parents/caregivers was recruited. Adolescents and parents provided similar feedback on how to improve the usability of the Internet program. Most changes to the website were completed after the initial cycles of English and French testing. Both groups also found information presented on the website to be appropriate, credible, and relevant to their experiences of going through cancer. Participants reported the program would have been extremely helpful when they were first diagnosed with cancer. Usability testing uncovered some issues that affected the usability of the website that led to refinements in the online program.
引用
收藏
页码:70 / 82
页数:13
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