Embedding lived experience into mental health academic research organizations: Critical reflections

被引:10
|
作者
Hawke, Lisa D. [1 ,2 ]
Sheikhan, Natasha Y. [1 ,3 ]
Jones, Nev [4 ]
Slade, Mike [5 ,6 ]
Soklaridis, Sophie [2 ,3 ,7 ]
Wells, Samantha [3 ,8 ]
Castle, David [1 ,2 ]
机构
[1] Ctr Addict & Mental Hlth, Ctr Complex Intervent, Toronto, ON, Canada
[2] Univ Toronto, Dept Psychiat, Toronto, ON, Canada
[3] Univ Toronto, Dalla Lana Sch Publ Hlth, Toronto, ON, Canada
[4] Univ Pittsburgh, Sch Social Work, Pittsburgh, PA 15260 USA
[5] Univ Nottingham, Sch Hlth Sci, Nottingham, England
[6] Nord Univ, Fac Med & Hlth Sci, Namsos, Norway
[7] Ctr Addict & Mental Hlth, Educ Serv, Toronto, ON, Canada
[8] Ctr Addict & Mental Hlth, Inst Mental Hlth Policy Res, Toronto, ON, Canada
关键词
academics; addiction; lived experience; lived expertise; mental illness; patient engagement; patient-oriented research;
D O I
10.1111/hex.13586
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Background As part of a growing emphasis on engaging people with lived experience of mental health conditios in mental health research, there are increasing calls to consider and embed lived experience throughout academic research institutes. This extends beyond the engagement of lay patients and also considers the potential roles of academic researchers with lived experience. When the lived experience of academic researchers is applied to academic work, there is the potential to improve the relevance of the research, while destigmatizing mental illness within academia. However, there are different and often contrasting perspectives on the way a lived experience academic researcher initiative should be implemented. Objectives This article describes some of the key issues to be considered when planning an initiative that leverages and values the lived experience of academic researchers, including the advantages and disadvantages of each potential approach. Discussion & Recommendations Institutions are encouraged to reflect on the ways that they might support and value lived experience among academic researchers. In developing any such initiative, institutions are encouraged to be transparent about their objectives and values, undertake a careful planning process, involve researchers with lived experience from the outset and consistently challenge the stigma experienced by academic researchers with lived experience. Patient or Public Contribution Multiple authors are academic researchers with lived experience of mental health conditions.
引用
收藏
页码:2299 / 2305
页数:7
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