Community Advisory Boards Guiding Engaged Research Efforts within a Clinical Translational Sciences Award: Key Contextual Factors Explored

被引:19
|
作者
Halladay, Jacqueline R. [1 ]
Donahue, Katrina E. [1 ]
Sleath, Betsy [2 ]
Reuland, Dan [3 ]
Black, Adina [4 ]
Mitchell, C. Madeline [5 ]
Breland, Carol E. [4 ]
Coyne-Beasley, Tamera [6 ]
Mottus, Kathleen [4 ,5 ]
Watson, Sable Noelle [5 ]
Lewis, Virginia [4 ]
Wynn, Mysha [7 ]
Corbie-Smith, Giselle [4 ,8 ,9 ]
机构
[1] Univ N Carolina, Dept Family Med, Cecil G Sheps Ctr Hlth Serv Res, Chapel Hill, NC 27514 USA
[2] Univ N Carolina, Div Pharmaceut Outcomes & Policy, UNC Eshelman Sch Pharm, Cecil G Sheps Ctr Hlth Serv Res, Chapel Hill, NC USA
[3] Univ N Carolina, Lineberger Comprehens Canc Ctr, Dept Med, Cecil G Sheps Ctr Hlth Serv Res, Chapel Hill, NC 27599 USA
[4] Univ N Carolina, North Carolina Translat & Clin Sci NC TraCS Inst, Chapel Hill, NC USA
[5] Univ N Carolina, Cecil G Sheps Ctr Hlth Serv Res, Chapel Hill, NC USA
[6] Univ N Carolina, Sch Med, Div Gen Pediat & Adolescent Med, MPH,Dept Pediat, Chapel Hill, NC 27515 USA
[7] PRIME Collect LLC, Austin, TX USA
[8] UNC Ctr Hlth Equ, Chapel Hill, NC USA
[9] Univ N Carolina, Dept Med, Dept Social Med, Sch Med, Chapel Hill, NC USA
基金
美国国家卫生研究院;
关键词
Community-based participatory research; community advisory groups; translational research; stakeholder engagement; community engagement; CENTERED OUTCOMES RESEARCH; STAKEHOLDER ENGAGEMENT; PATIENT; PARTICIPATION;
D O I
10.1353/cpr.2017.0044
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Background: Engaging stakeholders in research carries the promise of enhancing the research relevance, transparency, and speed of getting findings into practice. By describing the context and functional aspects of stakeholder groups, like those working as community advisory boards (CABs), others can learn from these experiences and operationalize their own CABs. Our objective is to describe our experiences with diverse CABs affiliated with our community engagement group within our institution's Clinical Translational Sciences Award (CTSA). We identify key contextual elements that are important to administering CABs. Methods: A group of investigators, staff, and community members engaged in a 6-month collaboration to describe their experiences of working with six research CABs. We identified the key contextual domains that illustrate how CABS are developed and sustained. Two lead authors, with experience with CABs and identifying contextual domains in other work, led a team of 13 through the process. Additionally, we devised a list of key tips to consider when devising CABs. Results: The final domains include (1) aligned missions among stakeholders (2) resources/support, (3) defined operational processes/shared power, (4) well-described member roles, and (5) understanding and mitigating challenges. The tips are a set of actions that support the domains. Conclusions: Identifying key contextual domains was relatively easy, despite differences in the respective CAB's condition of focus, overall mission, or patient demographics represented. By contextualizing these five domains, other research and community partners can take an informed approach to move forward with CAB planning and engaged research.
引用
收藏
页码:367 / 377
页数:11
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