Perceptions of Telehealth vs In-Person Visits Among Older Adults With Advanced Kidney Disease, Care Partners, and Clinicians

被引:73
|
作者
Ladin, Keren [1 ,2 ,3 ]
Porteny, Thalia [1 ,2 ,3 ]
Perugini, Julia M. [1 ]
Gonzales, Kristina M. [1 ,2 ,3 ]
Aufort, Kate E. [1 ,2 ,3 ]
Levine, Sarah K. [4 ]
Wong, John B. [5 ]
Isakova, Tamara [6 ]
Rifkin, Dena [7 ,8 ]
Gordon, Elisa J. [9 ,10 ,11 ]
Rossi, Ana [12 ]
Koch-Weser, Susan [13 ]
Weiner, Daniel E. [4 ]
机构
[1] Res Eth Aging & Community Hlth REACH Lab, 574 Boston Ave,Room 216, Medford, MA 02155 USA
[2] Tufts Univ, Dept Occupat Therapy, 574 Boston Ave,Room 216, Medford, MA 02155 USA
[3] Tufts Univ, Dept Community Hlth, 574 Boston Ave,Room 216, Medford, MA 02155 USA
[4] Tufts Med Ctr, William B Schwartz MD Div Nephrol, Boston, MA 02111 USA
[5] Tufts Med Ctr, Dept Med, Boston, MA 02111 USA
[6] Northwestern Univ, Feinberg Sch Med, Ctr Translat Metab & Hlth, Inst Publ Hlth & Med, Chicago, IL 60611 USA
[7] Vet Affairs Healthcare Syst, Div Nephrol, San Diego, CA USA
[8] Univ Calif San Diego, San Diego, CA 92103 USA
[9] Northwestern Univ, Feinberg Sch Med, Dept Surg, Div Transplantat, Chicago, IL 60611 USA
[10] Northwestern Univ, Feinberg Sch Med, Ctr Hlth Serv & Outcomes Res, Chicago, IL 60611 USA
[11] Northwestern Univ, Feinberg Sch Med, Ctr Bioeth & Humanities, Chicago, IL 60611 USA
[12] Piedmont Transplant Inst, Atlanta, GA USA
[13] Tufts Univ, Sch Med, Dept Publ Hlth & Community Med, Medford, MA 02155 USA
关键词
HOME DIALYSIS; HEALTH-CARE; TELEMEDICINE; NEPHROLOGY; COVID-19; TELENEPHROLOGY; DISPARITIES; MANAGEMENT; TRANSPLANT; PATIENT;
D O I
10.1001/jamanetworkopen.2021.37193
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
IMPORTANCE Telehealth has been posited as a cost-effective means for improving access to care for persons with chronic conditions, including kidney disease. Perceptions of telehealth among older patients with chronic illness, their care partners, and clinicians are largely unknown but are critical to successful telehealth use and expansion efforts. OBJECTIVE To identify patient, care partner, and nephrologists' perceptions of the patient-centeredness, benefits, drawbacks of telehealth compared to in-person visits. DESIGN, SETTING, AND PARTICIPANTS This qualitative study used semistructured interviews conducted from August to December 2020 with purposively sampled patients (aged 70 years or older, chronic kidney disease stages 4 to 5), care partners, and clinicians in Boston, Massachusetts; Chicago, Illinois; Portland, Maine; and San Diego, California. MAIN OUTCOMES AND MEASURES Participants described telehealth experiences, including factors contributing to and impeding engagement, satisfaction, and quality of care. Thematic analysis was used to analyze data. RESULTS Of 60 interviews, 19 (32%) were with clinicians, 30 (50%) with patients, and 11 (18%) with care partners; 16 clinicians (84%) were nephrologists; 17 patient participants (43%) were non-Hispanic Black, and 38 (67%) were women. Four overarching themes characterized telehealth's benefits and drawbacks for patient-centered care among older, chronically ill adults: inconsistent quality of care, patient experience and engagement, loss of connection and mistrust (eg, challenges discussing bad news), and disparities with accessing telehealth. Although telehealth improved convenience and care partner engagement, participants expressed concerns about clinical effectiveness and limitations of virtual physical examinations and potentially widening disparities in access. Many participants shared concerns about harms to the patient-clinician relationship, limited ability to comfort patients in virtual settings, and reduced patient trust. CONCLUSIONS AND RELEVANCE Older patients, care partners, and kidney clinicians (ie, nephrologists and physician assistants) shared divergent views of patient-centered telehealth care, especially its clinical effectiveness, patient experience, access to care, and clinician-patient relationship. Understanding older patients' and kidney clinicians' perceptions of telehealth elucidate barriers that should be addressed to promote high-quality care and telehealth use.
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页数:12
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