RESEARCH ETHICS EDUCATION FOR COMMUNITY-ENGAGED RESEARCH: A REVIEW AND RESEARCH AGENDA

被引:81
|
作者
Anderson, Emily E. [1 ]
Solomon, Stephanie [2 ]
Heitman, Elizabeth [3 ]
DuBois, James M. [2 ]
Fisher, Celia B. [4 ]
Kost, Rhonda G. [5 ]
Lawless, Mary Ellen [6 ]
Ramsey, Cornelia [7 ]
Jones, Bonnie [8 ]
Ammerman, Alice [8 ]
Ross, Lainie Friedman [9 ,10 ,11 ]
机构
[1] Loyola Univ Chicago, Neiswanger Inst Bioeth & Hlth Policy, Stritch Sch Med, Chicago, IL 60626 USA
[2] St Louis Univ, Albert Gnaegi Ctr Hlth Care Res Eth, St Louis, MO 63103 USA
[3] Vanderbilt Univ, Ctr Biomed Eth & Soc, Med Ctr, Nashville, TN 37203 USA
[4] Fordham Univ, Bronx, NY 10458 USA
[5] Rockefeller Univ, Ctr Clin & Translat Sci, New York, NY 10021 USA
[6] Case Western Reserve Univ, Clin Translat & Sci Collaborat Award CTSC, Cleveland, OH 44106 USA
[7] Virginia Commonwealth Univ, Ctr Clin & Translat Res CCTR, Richmond, VA 23284 USA
[8] Univ N Carolina, Chapel Hill, NC 27515 USA
[9] Univ Chicago, Dept Pediat, MacLean Ctr Clin Med Eth, Chicago, IL 60637 USA
[10] Univ Chicago, Dept Med, MacLean Ctr Clin Med Eth, Chicago, IL 60637 USA
[11] Univ Chicago, Dept Surg, MacLean Ctr Clin Med Eth, Chicago, IL 60637 USA
基金
美国国家卫生研究院;
关键词
community-based participatory research; community-engaged research; research ethics education; HUMAN-SUBJECTS PROTECTION; PARTICIPATORY RESEARCH; RESPONSIBLE CONDUCT; RESEARCH-NETWORK; HEALTH RESEARCH; MORAL DISTRESS; CHALLENGES; INSTRUCTION; KNOWLEDGE; DILEMMAS;
D O I
10.1525/jer.2012.7.2.3
中图分类号
B82 [伦理学(道德学)];
学科分类号
摘要
COMMUNITY ENGAGEMENT IS INCREASINGLY becoming an integral part of research. "Community-engaged research" (CEnR) introduces new stakeholders as well as unique challenges to the protection of participants and the integrity of the research process. We a group of representatives of CTSA-funded institutions and others who share expertise in research ethics and CEnR have identified gaps in the literature regarding (1) ethical issues unique to CEnR; (2) the particular instructional needs of academic investigators, community research partners, and IRB members; and (3) best practices for teaching research ethics. This paper presents what we know, as well as what we still need to learn, in order to develop quality research ethics educational materials tailored to the full range of stakeholder groups in CEnR.
引用
收藏
页码:3 / 19
页数:17
相关论文
共 50 条
  • [1] The ethics of conducting community-engaged homelessness research
    Runnels V.
    Hay E.
    Sevigny E.
    O'Hara P.
    Journal of Academic Ethics, 2009, 7 (1-2) : 57 - 68
  • [2] HUMAN SUBJECTS PROTECTIONS IN COMMUNITY-ENGAGED RESEARCH: A RESEARCH ETHICS FRAMEWORK
    Ross, Lainie Friedman
    Loup, Allan
    Nelson, Robert M.
    Botkin, Jeffrey R.
    Kost, Rhonda
    Smith, George R., Jr.
    Gehlert, Sarah
    JOURNAL OF EMPIRICAL RESEARCH ON HUMAN RESEARCH ETHICS, 2010, 5 (01) : 5 - 17
  • [3] Review of Community-Engaged Research in Pediatric Diabetes
    Butler, Ashley M.
    Hilliard, Marisa E.
    Comer-HaGans, DeLawnia
    CURRENT DIABETES REPORTS, 2018, 18 (08)
  • [4] Pedagogic Tailoring of a Human Research Ethics Training for Community-Engaged Research With Latinos
    Documet, Patricia I.
    Louth, William
    Smith-Tapia, Ivonne
    Jaime, Maria Catrina
    Miller, Elizabeth
    Taverno Ross, Sharon E.
    HEALTH PROMOTION PRACTICE, 2022, 23 (01) : 98 - 108
  • [5] Ethical Community-Engaged Research: A Literature Review
    Mikesell, Lisa
    Bromley, Elizabeth
    Khodyakov, Dmitry
    AMERICAN JOURNAL OF PUBLIC HEALTH, 2013, 103 (12) : E7 - E14
  • [6] Aligning clinical research ethics with community-engaged and participatory research in the United States
    Eder, Milton
    FRONTIERS IN PUBLIC HEALTH, 2023, 11
  • [7] Review of Community-Engaged Research in Pediatric Diabetes
    Ashley M. Butler
    Marisa E. Hilliard
    DeLawnia Comer-HaGans
    Current Diabetes Reports, 2018, 18
  • [8] Research and scholarly methods: Community-engaged research
    Moczygemba, Leticia R.
    Singh, Reshmi L.
    Baffoe, James O.
    JOURNAL OF THE AMERICAN COLLEGE OF CLINICAL PHARMACY, 2023, 6 (12): : 1366 - 1373
  • [9] Universities, civil society and the global agenda of community-engaged research
    Bourke, Alan
    GLOBALISATION SOCIETIES AND EDUCATION, 2013, 11 (04) : 498 - 519
  • [10] Technology and community-engaged research
    Brown, Mary Ellen
    Dinecola, Cassie
    JOURNAL OF TECHNOLOGY IN HUMAN SERVICES, 2020, 38 (01) : 3 - 21