Social support for women with chronic pelvic pain: What is helpful from whom?

Eight women with Chronic Pelvic Pain (CPP) were asked, by means of semi-structured interview, what had been helpful and unhelpful in terms of social support from their partners, families, friends, acquaintances, doctors, nurses and other women with CPP. Firstly, thematic analysis employing a pre-defined social support category system revealed that particular forms of tangible support were preferred from specific support providers but emotional and informational support was appreciated from the whole support network. Secondly, interpretative phenomenological analysis revealed three major additional themes: 'Pain and Suffering' described the trauma suffered by these patients and the anger and anxiety surrounding their experience; 'Ideal Social Support' revealed a picture of desired support consisting of enduring emotional and practical support which did not undermine individual autonomy; 'Shortfalls in Social Support' had subsidiary themes entitled 'Lack of empathy' and 'Lack of engagement'. These themes were described and discussed in relation to each other, extant research and their clinical implications.