Support for decision-making on sharing health data for research: are data counsellors relevant?

被引：0

作者：

De Freitas, C. ^{[1
,2
,3
]}

Silva, S. ^{[1
,2
,3
]}

Machado, H. ^{[4
]}

Baptista, M. J. ^{[5
,6
]}

Teles, E. Leao ^{[7
]}

Maia, T. ^{[1
]}

Amorim, M. ^{[1
,3
]}

机构：

[1] Univ Porto, Inst Publ Hlth, EPIUnit, Porto, Portugal

[2] Univ Porto, Fac Med, Dept Cie ncias Saude Publ & Forenses Educ, Porto, Portugal

[3] Lab Invest Integrat & Translac Saude Populac, Porto, Portugal

[4] Univ Minho, Inst Social Sci, Commun & Soc Res Ctr, Porto, Portugal

[5] Ctr Hosp Univ Sao Joao, Ctr Referencia Cardiopatias Congenitas, Porto, Portugal

[6] Univ Porto, Fac Med, Dept Ginecol Obstet & Pediat, Porto, Portugal

[7] Ctr Hosp Univ Sao Joao, Ctr Referencia Doencas Hereditarias Metab, Porto, Portugal

来源：

EUROPEAN JOURNAL OF PUBLIC HEALTH | 2021年 / 31卷

关键词：

D O I：

暂无

中图分类号：

R1 [预防医学、卫生学];

学科分类号：

1004 ; 120402 ;

摘要：

引用

页数：2

共 50 条

[1] Data counselling: providing support for decision-making about genomic and health data sharing for research
de Freitas, Claudia
Pinho, Ana
Henriques, Ana
EUROPEAN JOURNAL OF HUMAN GENETICS, 2024, 32 : 72 - 72
[2] RESEARCH DATA AS AN ELEMENT IN DECISION-MAKING
WOLF, EP
SOCIAL PROBLEMS, 1959, 6 (04) : 362 - 366
[3] Sharing Linked Data for Health Research: Toward Better Decision Making
Dove, Edward S.
MEDICAL LAW REVIEW, 2023, 31 (02) : 308 - 314
[4] Sharing Linked Data for Health Research: Towards Better Decision Making
Adams, Carolyn
Allen, Judy
Flack, Felicity
INTERNATIONAL JOURNAL OF POPULATION DATA SCIENCE (IJPDS), 2021, 6 (02):
[5] The Catch data warehouse: support for community health care decision-making
Berndt, DJ
Hevner, AR
Studnicki, J
DECISION SUPPORT SYSTEMS, 2003, 35 (03) : 367 - 384
[6] PROVIDING RELEVANT TEST DATA FOR DECISION-MAKING PURPOSES
STETZ, FP
ELEMENTARY SCHOOL JOURNAL, 1978, 78 (03): : 220 - 225
[7] Data Custodians and the Decision-making Process: Releasing Data for Research
Adams, Carolyn
Allen, Judy
Flack, Felicity
JOURNAL OF LAW AND MEDICINE, 2018, 26 (02) : 433 - 453
[8] Integration of Water Data for Decision-Making and Research
Rajagopal, R.
JOURNAL OF CONTEMPORARY WATER RESEARCH & EDUCATION, 2009, 142 (01) : 28 - 35
[9] Research on Big Data Decision-making Support Platform of New Energy Bus
Feng, Hao Bo Wang
2018 INTERNATIONAL SYMPOSIUM ON POWER ELECTRONICS AND CONTROL ENGINEERING (ISPECE 2018), 2019, 1187
[10] DATA FOR DECISION-MAKING
PURDON, APM
OPERATIONAL RESEARCH QUARTERLY, 1958, 9 (02) : 72 - 80

← 1 2 3 4 5 →