"I Want to Live, Until I don't Want to Live Anymore": Involving Children With Life-Threatening and Life-Shortening Illnesses in Decision Making About Care and Treatment

被引：61
|
作者：
Bluebond-Langner, Myra [1 ,2 ]
Belasco, Jean Bello [3 ]
Wander, Marla DeMesquita [4 ]
机构：
[1] Rutgers State Univ, Dept Sociol Anthropol & Criminal Justice, Camden, NJ 08102 USA
[2] UCL Inst Child Hlth Great Ormond St Hosp, Louis Dundas Ctr Childrens Palliat Care, London WC1N 1EH, England
[3] Childrens Hosp Philadelphia, Div Oncol, Philadelphia, PA 19104 USA
[4] Rutgers State Univ, Dept Childhood Studies, Camden, NJ 08102 USA
来源：
NURSING CLINICS OF NORTH AMERICA | 2010年 / 45卷 / 03期
基金：
美国人文基金会;
关键词：
Decision making; Ethics; Life-limiting illnesses; Life-threatening illnesses; Child participation; Physician-patient relationship; INFORMED-CONSENT; AGE; 14; ADOLESCENTS; PARTICIPATION; ASSENT; CANCER; PREFERENCES; COMPETENCE; EXPERIENCE; PARENTS;
D O I：
10.1016/j.cnur.2010.03.004
中图分类号：
R47 [护理学];
学科分类号：
1011 ;
摘要：
Pediatric societies in North America and in the United Kingdom and Europe take the position that children should be part of the decision-making process. Less clear, however, is how that should be accomplished. This article outlines what needs to be considered when taking on the challenge of involving children with life-threatening and life-limiting illnesses in decision making regarding care and treatment and suggests an approach to involving children that recognizes their abilities, vulnerabilities, and relationships with others while at the same time ensuring an ethical and meaningful role for children.
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页码：329 / +
页数：16
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