Is the search for cerebral palsy 'cures' a reasonable and appropriate goal in the 2020s?

被引：5

作者：

Honan, Ingrid ^{[1
]}

Finch-Edmondson, Megan ^{[1
]}

Imms, Christine ^{[2
]}

Novak, Iona ^{[1
]}

Hogan, Amy ^{[3
]}

Clough, Shannon ^{[4
]}

Bonyhady, Bruce ^{[5
]}

McIntyre, Sarah ^{[1
]}

Elliott, Catherine ^{[6
,7
]}

Wong, Shirley ^{[4
]}

Bink, Michael ^{[8
]}

Badawi, Nadia ^{[1
,9
]}

机构：

[1] Univ Sydney, Fac Med & Hlth, Sydney Med Sch, Specialty Child & Adolescent Hlth,Cerebral Palsy, Sydney, NSW, Australia

[2] Univ Melbourne, Dept Paediat, Melbourne, Vic, Australia

[3] Cerebral Palsy Soc New Zealand, Auckland, New Zealand

[4] Australian & New Zealand Cerebral Palsy Strategy, Cerebral Palsy, Sydney, NSW, Australia

[5] Univ Melbourne, Melbourne Disabil Inst, Melbourne, Vic, Australia

[6] Curtin Univ, Sch Occupat Therapy Social Work & Speech Pathol, Bentley, WA, Australia

[7] Telethon Kids Inst, Perth, WA, Australia

[8] Cerebral Palsy Australia, Sydney, NSW, Australia

[9] Childrens Hosp Westmead, Grace Ctr Newborn Intens Care, Westmead, NSW, Australia

来源：

DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY | 2022年 / 64卷 / 01期

关键词：

D O I：

10.1111/dmcn.15016

中图分类号：

R74 [神经病学与精神病学];

学科分类号：

摘要：

In the field of disability research and advocacy, the notion of 'cures' is contentious. Cerebral palsy (CP) is no exception. In this narrative review, we combine perspectives gained during community consultation undertaken for the Australian and New Zealand Cerebral Palsy Strategy, 2020 with those published in the scientific and grey literature to understand whether 'cures for CP' is a reasonable and appropriate goal. We frame these perspectives through the lens of several ethical principles central to the discussion. These include maintaining hope while also being realistic, sensitivity to sharply different viewpoints amongst people with disability and their families, and responding to community priorities, societal attitudes, and identity. Through this exploration of the literature and perspectives, we arrived at a definition of 'cures for CP' that is pluralized and focuses on functional improvement and/or symptom reduction whilst still acknowledging the potential for neural repair/regeneration strategies.

引用

页码：49 / 55

页数：7

共 4 条

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[J]. DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY, 2024, 66 (01): : 70 - 81
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[J]. ATTENTION PERCEPTION & PSYCHOPHYSICS, 2020, 82 (03) : 1538 - 1538
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Graduate Program in Applied Informatics, Laboratory of Bioinformatics, University of Fortaleza, CE, Fortaleza, Brazil
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不详
518055, China
[J]. Neural Comput. Appl, 28 (17757):

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