adolescents;
chronic illness;
health care services;
CYSTIC-FIBROSIS CENTERS;
YOUNG-ADULTS;
NATIONAL-SURVEY;
CEREBRAL-PALSY;
ADOLESCENTS;
CHILDREN;
PERCEPTIONS;
SERVICES;
PROGRAMS;
DISEASE;
D O I:
10.1093/jpepsy/jsp128
中图分类号:
B844 [发展心理学(人类心理学)];
学科分类号:
040202 ;
摘要:
Objective The aim of this study was to develop the Transition Readiness Assessment Questionnaire (TRAQ), a measure of readiness for transition from pediatric to adult healthcare for youth with special health care needs (YSHCN). Methods We administered TRAQ to 192 YSHCN aged 16-26 years in three primary diagnostic categories, conducted factor analysis, and assessed differences in TRAQ scores by age, gender, race, and primary diagnosis type. Results Factor analysis identified two TRAQ domains with high internal consistency: Skills for Self-Management and Skills for Self-Advocacy. Each domain had high internal consistency. In multivariate regression models, older age and a primary diagnosis of an activity limiting physical condition were associated with higher scores in Self-Management, and female gender and a primary diagnosis of an activity limiting physical condition were associated with higher scores in Self-Advocacy. Conclusions Our initial validation study suggests the TRAQ is a useful tool to assess transition readiness in YSHCN and to guide educational interventions by providers to support transition.
机构:
Univ Fed Sao Paulo UNIFESP, Escola Paulista Med, Dept Pediat, Setor Reumatol,Disciplina Alergia Imunol Clin & R, Sao Paulo, SP, Brazil
Univ Fed Sao Paulo UNIFESP, Escola Paulista Med, Sao Paulo, SP, BrazilUniv Fed Sao Paulo UNIFESP, Escola Paulista Med, Dept Pediat, Setor Reumatol,Disciplina Alergia Imunol Clin & R, Sao Paulo, SP, Brazil
Anelli, Catherine G.
Len, Claudio A.
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机构:
Univ Fed Sao Paulo UNIFESP, Escola Paulista Med, Dept Pediat, Setor Reumatol,Disciplina Alergia Imunol Clin & R, Sao Paulo, SP, Brazil
Univ Fed Sao Paulo UNIFESP, Escola Paulista Med, Sao Paulo, SP, BrazilUniv Fed Sao Paulo UNIFESP, Escola Paulista Med, Dept Pediat, Setor Reumatol,Disciplina Alergia Imunol Clin & R, Sao Paulo, SP, Brazil
Len, Claudio A.
Terreri, Maria Teresa R. A.
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机构:
Univ Fed Sao Paulo UNIFESP, Escola Paulista Med, Dept Pediat, Setor Reumatol,Disciplina Alergia Imunol Clin & R, Sao Paulo, SP, Brazil
Univ Fed Sao Paulo UNIFESP, Escola Paulista Med, Sao Paulo, SP, BrazilUniv Fed Sao Paulo UNIFESP, Escola Paulista Med, Dept Pediat, Setor Reumatol,Disciplina Alergia Imunol Clin & R, Sao Paulo, SP, Brazil
Terreri, Maria Teresa R. A.
Russo, Gleice C. S.
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机构:
Univ Fed Sao Paulo UNIFESP, Escola Paulista Med, Dept Pediat, Setor Reumatol,Disciplina Alergia Imunol Clin & R, Sao Paulo, SP, Brazil
Univ Fed Sao Paulo UNIFESP, Escola Paulista Med, Sao Paulo, SP, BrazilUniv Fed Sao Paulo UNIFESP, Escola Paulista Med, Dept Pediat, Setor Reumatol,Disciplina Alergia Imunol Clin & R, Sao Paulo, SP, Brazil
Russo, Gleice C. S.
Reiff, Andreas O.
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机构:
Univ Southern Calif, Keck Sch Med, Childrens Hosp Los Angeles, Div Rheumatol, Los Angeles, CA USA
Univ Fed Sao Paulo UNIFESP, Escola Paulista Med, Sao Paulo, SP, BrazilUniv Fed Sao Paulo UNIFESP, Escola Paulista Med, Dept Pediat, Setor Reumatol,Disciplina Alergia Imunol Clin & R, Sao Paulo, SP, Brazil
机构:
Univ Toronto, Lawrence S Bloomberg Fac Nursing, Toronto, ON, Canada
Ctr Addict & Mental Hlth, Toronto, ON, CanadaUniv Toronto, Lawrence S Bloomberg Fac Nursing, Toronto, ON, Canada
Davies, Julia
Allemang, Brooke
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机构:
Univ Calgary, Fac Social Work, Calgary, AB, CanadaUniv Toronto, Lawrence S Bloomberg Fac Nursing, Toronto, ON, Canada