Measuring the Transition Readiness of Youth with Special Healthcare Needs: Validation of the TRAQ-Transition Readiness Assessment Questionnaire

被引:369
|
作者
Sawicki, Gregory S. [1 ]
Lukens-Bull, Katryne [2 ]
Yin, Xiaoping [3 ]
Demars, Nathan [1 ]
Huang, I-Chan [4 ,5 ]
Livingood, William [3 ,6 ]
Reiss, John
Wood, David [3 ,6 ]
机构
[1] Harvard Univ, Sch Med, Childrens Hosp Boston, Div Resp Dis, Boston, MA 02115 USA
[2] Univ Florida, Coll Med, Off Res Affairs, Jacksonville, FL USA
[3] Univ Florida, Coll Med, CHEQR, Jacksonville, FL USA
[4] Univ Florida, Coll Med, Dept Epidemiol & Hlth Policy Res, Jacksonville, FL USA
[5] Univ Florida, Coll Med, Inst Child Hlth Policy, Jacksonville, FL USA
[6] Univ Florida, Coll Med, Dept Pediat, Jacksonville, FL USA
关键词
adolescents; chronic illness; health care services; CYSTIC-FIBROSIS CENTERS; YOUNG-ADULTS; NATIONAL-SURVEY; CEREBRAL-PALSY; ADOLESCENTS; CHILDREN; PERCEPTIONS; SERVICES; PROGRAMS; DISEASE;
D O I
10.1093/jpepsy/jsp128
中图分类号
B844 [发展心理学(人类心理学)];
学科分类号
040202 ;
摘要
Objective The aim of this study was to develop the Transition Readiness Assessment Questionnaire (TRAQ), a measure of readiness for transition from pediatric to adult healthcare for youth with special health care needs (YSHCN). Methods We administered TRAQ to 192 YSHCN aged 16-26 years in three primary diagnostic categories, conducted factor analysis, and assessed differences in TRAQ scores by age, gender, race, and primary diagnosis type. Results Factor analysis identified two TRAQ domains with high internal consistency: Skills for Self-Management and Skills for Self-Advocacy. Each domain had high internal consistency. In multivariate regression models, older age and a primary diagnosis of an activity limiting physical condition were associated with higher scores in Self-Management, and female gender and a primary diagnosis of an activity limiting physical condition were associated with higher scores in Self-Advocacy. Conclusions Our initial validation study suggests the TRAQ is a useful tool to assess transition readiness in YSHCN and to guide educational interventions by providers to support transition.
引用
收藏
页码:160 / 171
页数:12
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