Optimizing Recruitment of Black Adolescents into Behavioral Research: A Multi-Center Study

被引:15
|
作者
Ellis, Deborah A. [1 ]
Rhind, Jillian [1 ]
Carcone, April Idalski [1 ]
Evans, Meredyth [2 ,3 ]
Weissberg-Benchell, Jill [2 ,3 ]
Buggs-Saxton, Colleen [4 ]
Boucher-Berry, Claudia [5 ]
Miller, Jennifer L. [6 ]
Al Wazeer, Mouhammad [7 ]
Drossos, Tina [8 ]
Dekelbab, Bassem [9 ]
机构
[1] Wayne State Univ, Dept Family Med & Publ Hlth Sci, Sch Med, IBio Behav Sci 6135 Woodward Ave, Detroit, MI 48202 USA
[2] Ann & Robert H Lurie Childrens Hosp, Dept Psychiat & Behav Hlth, Chicago, IL USA
[3] Northwestern Feinberg Sch Med, Chicago, IL USA
[4] Wayne State Univ, Dept Pediat, Sch Med, Detroit, MI 48202 USA
[5] Univ Illinois, Dept Pediat Endocrinol, Med Ctr Chicago, Chicago, IL 60680 USA
[6] Ann & Robert Lurie Childrens Hosp, Dept Pediat Endocrinol, Chicago, IL USA
[7] Ascension St John Hosp, Detroit, MI USA
[8] Univ Chicago Med, Dept Psychiat & Behav Neurosci, Chicago, IL USA
[9] Beaumont Childrens Hosp, Dept Pediat Endocrinol, Royal Oak, MI USA
关键词
adolescents; diabetes; race/ethnicity; research design and methodology; DIABETES MANAGEMENT; RACIAL/ETHNIC MINORITY; METABOLIC-CONTROL; GLYCEMIC CONTROL; SELF-MANAGEMENT; CHILDREN; INTERVENTION; YOUTH; FAMILIES; CHAOS;
D O I
10.1093/jpepsy/jsab008
中图分类号
B844 [发展心理学(人类心理学)];
学科分类号
040202 ;
摘要
Objectives Adolescents of color are underrepresented in behavioral health research. Study aims were to quantify the amount and types of outreach effort needed to recruit young Black adolescents with type 1 diabetes and their primary caregiver into a clinical trial evaluating a parenting intervention and to determine if degree of recruitment difficulty was related to demographic, diabetes-related, or family characteristics. Methods Data were drawn from a multi-center clinical trial. Participants (N = 155) were recruited from seven pediatric diabetes clinics. Contact log data were used to quantify both number/type of contacts prior to study enrollment as well as length of time to enrollment. Families were coded as having expedited recruitment (ER) or prolonged recruitment (PR). Baseline study data were used to compare ER and PR families on sociodemographic factors, adolescent diabetes management and health status and family characteristics such as household organization and family conflict. Results Mean length of time to recruit was 6.6 months and mean number of recruitment contacts was 10.3. Thirty-nine percent of the sample were characterized as PR. These families required even higher levels of effort (mean of 9.9 months to recruit and 15.4 contacts). There were no significant between-group differences on any baseline variable for ER and PR families, with the exception of family income. Conclusions Researchers need to make persistent efforts in order to successfully enroll adolescents of color and their caregivers into clinical trials. Social determinants of health such as family resources may differentiate families with prolonged recruitment within such samples.
引用
收藏
页码:611 / 620
页数:10
相关论文
共 50 条
  • [1] The Multi-Center Behavioral Healthcare Research Consortium
    Bologna, NC
    Stutrud, M
    [J]. BEHAVIORAL HEALTHCARE TOMORROW, 1997, 6 (02): : 43 - 44
  • [2] Methodology for developing a multi-center clinical research study
    Thomas, SS
    Buckon, CE
    Russman, BS
    Ackman, JD
    [J]. PEDIATRIC GAIT: A NEW MILLENNIUM IN CLINICAL CARE AND MOTION ANALYSIS TECHNOLOGY, 2000, : 8 - 15
  • [3] Interim recruitment prediction for multi-center clinical trials
    Urbas, Szymon
    Sherlock, Chris
    Metcalfe, Paul
    [J]. BIOSTATISTICS, 2022, 23 (02) : 485 - 506
  • [4] Managing Multi-Center Recruitment in the PLCO Cancer Screening Trial
    Gohagan, John K.
    Broski, Karen
    Gren, Lisa H.
    Fouad, Mona N.
    Higgins, Darlene
    Lappe, Karen
    Ogden, Sheryl
    Shambaugh, Vicki
    Pinsky, Paul F.
    O'Brien, Barbara
    Yurgalevich, Susan
    Riley, Tom
    Wright, Patrick
    Prorok, Philip C.
    [J]. REVIEWS ON RECENT CLINICAL TRIALS, 2015, 10 (03) : 187 - 193
  • [5] Sequential patient recruitment monitoring in multi-center clinical trials
    Kim, Dong-Yun
    Han, Sung-Min
    Youngblood, Marston, Jr.
    [J]. COMMUNICATIONS FOR STATISTICAL APPLICATIONS AND METHODS, 2018, 25 (05) : 501 - 512
  • [6] The prevalence of Barrett's esophagus in children and adolescents: A prospective multi-center study
    Gilger, Mark A.
    El-Serag, Hashem B.
    Fairly, Kenn W.
    Shub, Mitchell D.
    Integlia, Mark J.
    Richardson, Peter A.
    Tatevian, Nina
    [J]. GASTROENTEROLOGY, 2007, 132 (04) : A254 - A254
  • [7] Multi-center Study of Brugada Syndrome
    Hiraoka, Masayasu
    [J]. JOURNAL OF ARRHYTHMIA, 2007, 23 (02) : 83 - 84
  • [8] TIMOLOL - CANADIAN MULTI-CENTER STUDY
    LEBLANC, RP
    KRIP, G
    [J]. OPHTHALMOLOGY, 1981, 88 (03) : 244 - 248
  • [9] Prevalence of vestibular and balance disorders in children and adolescents according to age: A multi-center study
    Lee, Jong Dae
    Kim, Chang-Hee
    Hong, Seok Min
    Kim, Sung Huhn
    Suh, Myung-Whan
    Kim, Min-Beom
    Shim, Dae Bo
    Chu, Hosuk
    Lee, No Hee
    Kim, Minbum
    Hong, Sung Kwang
    Seo, Jae-Hyun
    [J]. INTERNATIONAL JOURNAL OF PEDIATRIC OTORHINOLARYNGOLOGY, 2017, 94 : 36 - 39
  • [10] Optimizing recruitment and retention of adolescents in ED research: Findings from concussion biomarker pilot study
    Mbachu, Sean N.
    Pieribone, Vincent A.
    Bechtel, Kirsten A.
    McCarthy, Madeline L.
    Melnick, Edward R.
    [J]. AMERICAN JOURNAL OF EMERGENCY MEDICINE, 2018, 36 (05): : 884 - 887